My son had been on idebenone for 4 years before he stopped it 1 month ago along with increasing Deflazacort dose.
Since this time he has been experiencing strange behaviours like arguing with his little sister and he has been heperactive,being nervous,but he is in good euphoric mood!
Is this related to stopping Idebenone or increased Deflazacort dose?
How can he outgrow this?
My son is 9 years ol…