My son was diagnosed this week with Duchenne. He has exon deletion 45. He is 5.5 years old (will be 6 in January). We are seeing Dr. Nancy Kuntz at the Lurie Children's Hospital in Chicago. I have a lot of questions that I think parents who have been through this could help me with. I don't think it makes sense to just bombard the message board with a bunch of questions- so if you are able to hel…