Our 4 year old son was diagnosed with Duchenne in November 2010 (Deletion 3 to 43).  Under the care of Dr. Wong we are waiting for the results of a muscle biopsy to see the correct dose of steroid treatment.  Dr Wong was impressed with his overall strength but puzzled by very high and changing CK values.  As high as 97000 and down to 22000.  We have Deflazacort at the house and waiting to start b…