Kristin Linke


Ellenton, FL

United States

Profile Information:

About me:
I am a mother of 3. I am married to my wonderful husband Sean, we have been married for 15 years now. I am athletic, my favorite sport is volleyball. I am a United States Air Force Veteran. I served from 2001-2005. I am 1 of 7 children and have a fraternal twin sister. I am a confirmed carrier of DMD.
About my family:
I have 3 beautiful, and smart children. Skyler (15), Gavin (10), and Jaxon (6 yr). My husband Sean is a hard worker and enjoys his job. Gavin was diagnosed with DMD back in Sept 2009. We found out by accident because he stopped growing and the doctors ran blood tests. It took from April 2009-Sept 2009 to find out. We had Jaxon tested December 2010 and unfortunately his test came back positive. We are trying to get ourselves as educated as possible with this disease.
Name(s) of child(ren)/individual(s) with Duchenne:
Sean Linke
Age(s) of child(ren)/individual(s) with Duchenne:
0-3, 7-12

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  • Perlita & Gordy Hains

    hi kristin - how far are u from Toms River NJ??? a great friend of mine, lives there... her youngest has DMD. We found out 1 yr ago... i couldn't cope for many months but now am much better & have learned to get thru each day w/ grace & strength.... some days easier than others. call anytime 717-821-5666 cell - we are goingt o PPMD conference in June - I highty recommend it. xoxox
  • Alina Popovici

    hy,Kristin,i have 2kids too with Duchenne,i`m sorry you are in the same situation,i understand that you are confirmed carrier of DMD,i am too,i wanted to ask u if your girl is carrier too .if u want we can talk about this.good luck for u,for me and for every child who need a miracle.

  • Sai Chand. Gurujala

    Hi Kristin,

    How is your son now. My nephew diagnosed with DMD in 2016.