CHRISTINA RODRIGUEZ

Female

ONTARIO, CA

United States

Profile Information:

About me:
HI, MY NAME IS CHRISTINA.
About my family:
I HAVE A SON NAMED BRYAN WHO HAS DMD (EXON 17). MY SON IS NOW 16 YEARS OLD AND IN THE 11TH GRADE.
Name(s) of child(ren)/individual(s) with Duchenne:
BRYAN
Age(s) of child(ren)/individual(s) with Duchenne:
13-18
City:
ONTARO
State:
CA

Comment Wall:

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  • Gregory

    Please join our San Francisco Bay Area Families group.

    Greg
  • cheryl cliff

    Hi Christina,
    somewhere I read you asked where to get deflazacort from. we get ours from Mastersmarketing.com. It's located in the UK but they mail it to you after they receive the rx from your doc. They have an 800 number for US patients but I usually contact them by email. Ask for Julie, she can assist you. Also, you won't want to get too close to running out of deflaz before your next re-order. It can take awhile to ship AND orders sometimes get backlogged just before Christmas since the mail is bogged down. I usually order just before thanksgiving so as not to run out.
  • Michele Perry

    Christina:  We are using an at home teacher right now for our son Chris.  He did not have surgery, but fractured his femur.  We started out with emailing homework, back and forth with some of his teachers (not all were on board with this system), then got home schooling twice a week with an actual teacher.  This seems to work better since the teacher corrects the work right away - I do not have to email back and forth.  The resource teacher actually set this up.  Hope this helps a bit.  Michele  PS  Nice to "meet" you.