Jun 5, 2008
Aug 3, 2008
Nov 9, 2009
hi i have a son jacob that is 7. i am looking for parents that know where we are in the dmd.
Dec 16, 2012
PPMD has launched a program – Risk/Benefit in Duchenne Therapies – to help inform the FDA and other government agencies, biopharmaceutical companies, and others about the treatment priorities and risk tolerance of the Duchenne community.
We’ve had a great response to our first survey, with more than 90 participants so far, but need a few more before we close it tomorrow.
If you are a parent or guardian of a child who is able to walk some, but is having a lot of difficulty, please consider taking our survey before 9 PM eastern tomorrow.
Thank you for your participation!
Feb 19, 2013
Jan 26, 2015
Does anyone have a health aid in school that you employ (vs. the school district)? My rising 5th grader goes to a private school that is requiring him to have an aid in order to return to school next year. I'm scrambling trying to find someone and then find someone to pay for it. The small school is good for him and I want to stay there if at all possible.
Jun 22, 2016
Jun 27, 2016
I'm interview home health aids for the first time. Does anyone have any advice? The aid will accompany James to school. This is all very new to me.
Aug 15, 2016