Cycle the Americas

8 members Latest Activity: Nov 18, 2009 Joy and Joff are cycling 20,000 miles in 20 months for boys who may not make it to 20 yrs... My friends Joy and Joff are going on a journey of a…

San Francisco Bay Area Families

27 members Latest Activity: Feb 22, 2013

Bereaved Parents

17 members Latest Activity: Apr 22, 2011 For those who have lost a child.

Dad's Only

52 members Latest Activity: Apr 3, 2016 Become leaders in our community, Build a stronger bond between fathers and their children, Enjoy the rewards, that being a father involved in your…

Wisconsin Familes

14 members Latest Activity: Nov 23, 2010 For Wisconsin families to share and post information, ideas, etc.

New York Families

44 members Latest Activity: Feb 18, 2015

Discussion group for families in New York on fundraising events, care, advocacy.

Illinois/Missouri Families

33 members Latest Activity: Apr 24, 2017 This group is for families from Illinois and Missouri

Duplications

72 members Latest Activity: Nov 7, 2017

Adcom

1 member Latest Activity: Jul 11, 2017

Exon skipping 59

1 member Latest Activity: Feb 10, 2017

This group is organized for those who could benefit from exon 59 skipping.

All relevant information are welcome.