All Groups (130)

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  • Single and dealing with DMD

    Single and dealing with DMD

    30 members Latest Activity: Feb 13, 2017 This group is for anyone that is or about to be single, and their families with DMD/BMD.

  • Grief and Loss

    Grief and Loss

    18 members Latest Activity: Jan 15, 2016 For any parent that needs to discuss those fellings of grief and loss

  • Switzerland

    Switzerland

    6 members Latest Activity: Jan 28, 2016 For all people from Switzerland, people with friends in Switzerland or just anyone who is interested in Switzerland.

  • Ottawa families

    Ottawa families

    6 members Latest Activity: Feb 3, 2016 DMD support for families in the Ottawa Canada area.

  • UPA! Familias que hablan Espanol

    UPA! Familias que hablan Espanol

    10 members Latest Activity: Jul 29, 2013 This group is for spanish speaking DMD/DMB families. Este grupo es para familias que hablan espanol. UPA!

  • Aunts Full of Love

    Aunts Full of Love

    9 members Latest Activity: Jul 11, 2011 A forum for aunts of DMD children to help each other find ways to help our families with this journey.

  • PTC 124-2b Clinical Trial

    PTC 124-2b Clinical Trial

    31 members Latest Activity: May 1, 2018 Various issues re: PTC 124 Clinical Trials for current or prospective participants worldwide

  • Alabama Families

    Alabama Families

    10 members Latest Activity: Mar 4, 2017 Families and friends in Sweet Home Alabama

  • Sacramento Area Moms

    Sacramento Area Moms

    7 members Latest Activity: Feb 24, 2010 A group for Sacramento area moms who would like to get together with other area moms for mom's night out, and to make play dates for our sons.

  • Ohio Families

    Ohio Families

    26 members Latest Activity: Nov 17, 2018

  • North Carolina/South Carolina Families

    North Carolina/South Carolina Families

    20 members Latest Activity: Jan 16, 2016 A group for families living in North and South Carolina

  • Mom's Cafe

    Mom's Cafe

    125 members Latest Activity: Oct 23, 2017 A group for Mom's who like to vent and talk about life with DMD kids

  • Washington & Pacific Northwest Families

    Washington & Pacific Northwest Families

    50 members Latest Activity: Jul 11, 2016 A place for families and friends living in Washington and the Pacific Northwest to connect.

  • PTC124 Phase 2a Extension Study Families

    PTC124 Phase 2a Extension Study Families

    24 members Latest Activity: Jan 19, 2016 This group is intended to be for families of the 38 boys who participated in the clinical trial of PTC124 phase 2a, to be able to share with each…

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