All Groups (128)

Deletion of exon 51

19 members Latest Activity: Jan 24, 2016 For the parents of boys with a deletion of exon 51.

Utah families with DMD

3 members Latest Activity: Jan 31, 2016

Families from the U.K (United Kingdom)

46 members Latest Activity: Mar 23, 2016 A group for families from the U.K to chat about their families.

Single and dealing with DMD

30 members Latest Activity: Feb 13 This group is for anyone that is or about to be single, and their families with DMD/BMD.

Grief and Loss

18 members Latest Activity: Jan 15, 2016 For any parent that needs to discuss those fellings of grief and loss

Switzerland

6 members Latest Activity: Jan 28, 2016 For all people from Switzerland, people with friends in Switzerland or just anyone who is interested in Switzerland.

Ottawa families

6 members Latest Activity: Feb 3, 2016 DMD support for families in the Ottawa Canada area.

UPA! Familias que hablan Espanol

10 members Latest Activity: Jul 29, 2013 This group is for spanish speaking DMD/DMB families. Este grupo es para familias que hablan espanol. UPA!

Aunts Full of Love

9 members Latest Activity: Jul 11, 2011 A forum for aunts of DMD children to help each other find ways to help our families with this journey.

Alabama Families

10 members Latest Activity: Mar 4 Families and friends in Sweet Home Alabama

NEW ENGLAND FAMILIES

41 members Latest Activity: Feb 13 A PLACE FOR FAMILIES FROM NE TO MEET

Exon Deletion 3-7

26 members Latest Activity: Nov 9, 2016 Connect with other families with exon deletion 3-7.

Middle Tennessee Families with Duchenne

12 members Latest Activity: Nov 11, 2014 Families living in Middle Tennessee who utilize Vanderbilt Childrens Hospital

Sacramento Area Moms

7 members Latest Activity: Feb 24, 2010 A group for Sacramento area moms who would like to get together with other area moms for mom's night out, and to make play dates for our sons.

North Carolina/South Carolina Families

20 members Latest Activity: Jan 16, 2016 A group for families living in North and South Carolina

Mom's Cafe

124 members Latest Activity: May 31, 2016 A group for Mom's who like to vent and talk about life with DMD kids

Washington & Pacific Northwest Families

50 members Latest Activity: Jul 11, 2016 A place for families and friends living in Washington and the Pacific Northwest to connect.

PTC124 Phase 2a Extension Study Families

24 members Latest Activity: Jan 19, 2016 This group is intended to be for families of the 38 boys who participated in the clinical trial of PTC124 phase 2a, to be able to share with each…

Cincinnati Children's Hospital Medical Center

193 members Latest Activity: Sep 17, 2015

For families who take their children to Cincinnati Children's Hospital for DMD/BMD  medical care.

Florida Families

40 members Latest Activity: Jan 18, 2016 Families from Florida that are affected by DMD/BMD