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12 members Latest Activity: Feb 20, 2020
19 members Latest Activity: Jan 24, 2016 For the parents of boys with a deletion of exon 51.
3 members Latest Activity: Jan 31, 2016
46 members Latest Activity: Mar 23, 2016 A group for families from the U.K to chat about their families.
30 members Latest Activity: Feb 13, 2017 This group is for anyone that is or about to be single, and their families with DMD/BMD.
18 members Latest Activity: Jan 15, 2016 For any parent that needs to discuss those fellings of grief and loss
6 members Latest Activity: Jan 28, 2016 For all people from Switzerland, people with friends in Switzerland or just anyone who is interested in Switzerland.
6 members Latest Activity: Feb 3, 2016 DMD support for families in the Ottawa Canada area.
10 members Latest Activity: Jul 29, 2013 This group is for spanish speaking DMD/DMB families. Este grupo es para familias que hablan espanol. UPA!
9 members Latest Activity: Jul 11, 2011 A forum for aunts of DMD children to help each other find ways to help our families with this journey.
31 members Latest Activity: May 1, 2018 Various issues re: PTC 124 Clinical Trials for current or prospective participants worldwide
10 members Latest Activity: Mar 4, 2017 Families and friends in Sweet Home Alabama
41 members Latest Activity: Feb 13, 2017 A PLACE FOR FAMILIES FROM NE TO MEET
12 members Latest Activity: Nov 11, 2014 Families living in Middle Tennessee who utilize Vanderbilt Childrens Hospital
7 members Latest Activity: Feb 24, 2010 A group for Sacramento area moms who would like to get together with other area moms for mom's night out, and to make play dates for our sons.
26 members Latest Activity: Nov 17, 2018
20 members Latest Activity: Jan 16, 2016 A group for families living in North and South Carolina
124 members Latest Activity: Oct 8, 2020 A group for Mom's who like to vent and talk about life with DMD kids
50 members Latest Activity: Jul 11, 2016 A place for families and friends living in Washington and the Pacific Northwest to connect.
24 members Latest Activity: Jan 19, 2016 This group is intended to be for families of the 38 boys who participated in the clinical trial of PTC124 phase 2a, to be able to share with each…
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