All Groups (130)

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  • Tactile Sensitivities

    Tactile Sensitivities

    41 members Latest Activity: May 4, 2015 A group for all the families that have children with tactile sensitivities, to share experiences and tips on how to deal with the additional issues…

  • Exon Deletion 52

    Exon Deletion 52

    11 members Latest Activity: Jan 24, 2015

  • Grief and Loss

    Grief and Loss

    18 members Latest Activity: Jan 15, 2016 For any parent that needs to discuss those fellings of grief and loss

  • Switzerland

    Switzerland

    6 members Latest Activity: Jan 28, 2016 For all people from Switzerland, people with friends in Switzerland or just anyone who is interested in Switzerland.

  • Ottawa families

    Ottawa families

    6 members Latest Activity: Feb 3, 2016 DMD support for families in the Ottawa Canada area.

  • UPA! Familias que hablan Espanol

    UPA! Familias que hablan Espanol

    10 members Latest Activity: Jul 29, 2013 This group is for spanish speaking DMD/DMB families. Este grupo es para familias que hablan espanol. UPA!

  • Aunts Full of Love

    Aunts Full of Love

    9 members Latest Activity: Jul 11, 2011 A forum for aunts of DMD children to help each other find ways to help our families with this journey.

  • PTC 124-2b Clinical Trial

    PTC 124-2b Clinical Trial

    31 members Latest Activity: May 1, 2018 Various issues re: PTC 124 Clinical Trials for current or prospective participants worldwide

  • Alabama Families

    Alabama Families

    10 members Latest Activity: Mar 4, 2017 Families and friends in Sweet Home Alabama

  • NEW ENGLAND FAMILIES

    NEW ENGLAND FAMILIES

    41 members Latest Activity: Feb 13, 2017 A PLACE FOR FAMILIES FROM NE TO MEET

  • Middle Tennessee Families with Duchenne

    Middle Tennessee Families with Duchenne

    12 members Latest Activity: Nov 11, 2014 Families living in Middle Tennessee who utilize Vanderbilt Childrens Hospital

  • Sacramento Area Moms

    Sacramento Area Moms

    7 members Latest Activity: Feb 24, 2010 A group for Sacramento area moms who would like to get together with other area moms for mom's night out, and to make play dates for our sons.

  • Mom's Cafe

    Mom's Cafe

    125 members Latest Activity: Oct 23, 2017 A group for Mom's who like to vent and talk about life with DMD kids

  • Washington & Pacific Northwest Families

    Washington & Pacific Northwest Families

    50 members Latest Activity: Jul 11, 2016 A place for families and friends living in Washington and the Pacific Northwest to connect.

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