PPMD Community

All Groups (126)

Search Groups

Sort by:

  • ataluren trial following up

    ataluren trial following up

    13 members Latest Activity: May 13, 2016 discussion about what we have to do

  • India

    India

    28 members Latest Activity: Dec 11, 2016 For folks to share information about any research happening in India for Duchenne.

  • exon 46-50 deletion

    exon 46-50 deletion

    14 members Latest Activity: Apr 16 For group of families having exon 46 to 50 deletion.

  • Memorial Wall

    Memorial Wall

    12 members Latest Activity: Jan 19, 2016 Remembering our B/DMD Boys who looses the battle with Muscular dystrophy. As family and friends, we advocate and battle this disease...but the…

  • Step Mum's to kids with B/DMD

    Step Mum's to kids with B/DMD

    2 members Latest Activity: Jan 31, 2012 Just a group to hear from other step mums about their experiences. Living full time with step kids or part time, dealing with the biological mums in…

  • Coach to Cure MD

    Coach to Cure MD

    26 members Latest Activity: Oct 21, 2015 For those wanting to be a part of Coach to Cure MD and share events and ideas

  • DOCTORS

    DOCTORS

    14 members Latest Activity: Jan 15, 2016 A PLACE FOR EVERYONE TO SHARE WHICH DOCTORS THEY TAKE THEIR BOYS TO.

  • Kansas City Area DMD families

    Kansas City Area DMD families

    10 members Latest Activity: Jul 12, 2016 All families with DMD/BMD children, in the Kansas City area, are welcome to post.

  • Western New York Families

    Western New York Families

    11 members Latest Activity: Jan 16, 2016 Families members of boys with DMD along with the boys themselves who are from the Western New York area.

  • FACES of South Texas

    FACES of South Texas

    17 members Latest Activity: Jun 28, 2012 FACES stands for Families Advocating Connecting, Educating and Supporting. This outreach group is part of PPMD's official volunteer outreach…

  • Medication/Supplement Journals

    Medication/Supplement Journals

    59 members Latest Activity: Jan 29, 2016 A place to keep a journal of what
    medication(s)/supplement(s) you are giving to your child.

  • Illinois FACES

    Illinois FACES

    15 members Latest Activity: Jan 15, 2016 A place to add suggestions, comments, ask questions or talk about anything with parents and caregivers in the Illinois FACES group.

  • Outliers - Intermediate between Duchenne & Becker MD

    Outliers - Intermediate between Duchenne & Becker MD

    45 members Latest Activity: Dec 15, 2016 The reading frame rule holds true 90% of the time. There remains those 10% that does not fit dmd/bmd phenotype. There is a 3rd form that may be…

  • DUPLICATION in DMD

    DUPLICATION in DMD

    32 members Latest Activity: Feb 13 To bring closer the families with DUPLICATION which is Rare-most of all DMD mutations.

  • Duchenne Smiles

    Duchenne Smiles

    115 members Latest Activity: Feb 27, 2014 A Duchenne smile is a True smile, cannot be faked and exemplifies true enjoyment.

  • Digital for Duchenne

    Digital for Duchenne

    3 members Latest Activity: Jan 31, 2016 Have you Gone Digital with Creative Memories? Are you making StoryBooks and looking for a place to share your pages and get ideas?

  • SMDA

    SMDA

    4 members Latest Activity: Jan 30, 2016 suncity as it is called,strats its project of creating a support system so as to help the DMD patints.,by way of early detection,physical therapy and…

  • Tactile Sensitivities

    Tactile Sensitivities

    41 members Latest Activity: May 4, 2015 A group for all the families that have children with tactile sensitivities, to share experiences and tips on how to deal with the additional issues…

RSS

Need help using this community site? Visit Ning's Help Page.

Members

Events

June 2017
SMTWTFS
123
45678910
11121314151617
18192021222324
252627282930
       

© 2017   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service