EXON 11 SKIPPING Group

4 members Latest Activity: May 30, 2016

Hi everyone.

I am creating  this group for a simple reason for finding all the children who require exon 11 Skipping.…

Atlantic Canada Families

9 members Latest Activity: Jan 23, 2017 a forum where families from Atlantic Canada can discuss local issues

ataluren trial following up

13 members Latest Activity: May 13, 2016 discussion about what we have to do

exon 46-50 deletion

14 members Latest Activity: Apr 16, 2017 For group of families having exon 46 to 50 deletion.

Memorial Wall

12 members Latest Activity: Jan 19, 2016 Remembering our B/DMD Boys who looses the battle with Muscular dystrophy. As family and friends, we advocate and battle this disease...but the…

Coach to Cure MD

26 members Latest Activity: Oct 21, 2015 For those wanting to be a part of Coach to Cure MD and share events and ideas

Dr. Kevin Flanigan - University Research Center, Utah

8 members Latest Activity: Aug 19, 2017 For all of you who see Dr. Flanigan as well.

DOCTORS

14 members Latest Activity: Jan 15, 2016 A PLACE FOR EVERYONE TO SHARE WHICH DOCTORS THEY TAKE THEIR BOYS TO.

Kansas City Area DMD families

10 members Latest Activity: Jul 12, 2016 All families with DMD/BMD children, in the Kansas City area, are welcome to post.

Western New York Families

11 members Latest Activity: Jan 16, 2016 Families members of boys with DMD along with the boys themselves who are from the Western New York area.

FACES of South Texas

17 members Latest Activity: Jun 28, 2012 FACES stands for Families Advocating Connecting, Educating and Supporting. This outreach group is part of PPMD's official volunteer outreach…

Medication/Supplement Journals

59 members Latest Activity: Jan 29, 2016 A place to keep a journal of what
medication(s)/supplement(s) you are giving to your child.

Illinois FACES

15 members Latest Activity: Jan 15, 2016 A place to add suggestions, comments, ask questions or talk about anything with parents and caregivers in the Illinois FACES group.

Outliers - Intermediate between Duchenne & Becker MD

48 members Latest Activity: Dec 10, 2018 The reading frame rule holds true 90% of the time. There remains those 10% that does not fit dmd/bmd phenotype. There is a 3rd form that may be…

DUPLICATION in DMD

32 members Latest Activity: Feb 13, 2017 To bring closer the families with DUPLICATION which is Rare-most of all DMD mutations.

Duchenne Smiles

115 members Latest Activity: Feb 27, 2014 A Duchenne smile is a True smile, cannot be faked and exemplifies true enjoyment.

Digital for Duchenne

3 members Latest Activity: Jan 31, 2016 Have you Gone Digital with Creative Memories? Are you making StoryBooks and looking for a place to share your pages and get ideas?

SMDA

4 members Latest Activity: Jan 30, 2016 suncity as it is called,strats its project of creating a support system so as to help the DMD patints.,by way of early detection,physical therapy and…

Tactile Sensitivities

41 members Latest Activity: May 4, 2015 A group for all the families that have children with tactile sensitivities, to share experiences and tips on how to deal with the additional issues…

Exon Deletion 52

11 members Latest Activity: Jan 24, 2015