Exon 17 skipping

4 members Latest Activity: Jan 29, 2016

Only 1.9% in the cases of exon deletion;

Only 1.9% opportunity for receiving treatment;

Let's join hands for our sons' future !

EXON 11 SKIPPING Group

4 members Latest Activity: May 30, 2016

Hi everyone.

I am creating  this group for a simple reason for finding all the children who require exon 11 Skipping.…

Atlantic Canada Families

9 members Latest Activity: Jan 23, 2017 a forum where families from Atlantic Canada can discuss local issues

ataluren trial following up

13 members Latest Activity: May 13, 2016 discussion about what we have to do

exon 46-50 deletion

14 members Latest Activity: Apr 16, 2017 For group of families having exon 46 to 50 deletion.

Memorial Wall

12 members Latest Activity: Jan 19, 2016 Remembering our B/DMD Boys who looses the battle with Muscular dystrophy. As family and friends, we advocate and battle this disease...but the…

Coach to Cure MD

26 members Latest Activity: Oct 21, 2015 For those wanting to be a part of Coach to Cure MD and share events and ideas

Dr. Kevin Flanigan - University Research Center, Utah

8 members Latest Activity: Aug 19, 2017 For all of you who see Dr. Flanigan as well.

DOCTORS

14 members Latest Activity: Jan 15, 2016 A PLACE FOR EVERYONE TO SHARE WHICH DOCTORS THEY TAKE THEIR BOYS TO.

Kansas City Area DMD families

10 members Latest Activity: Jul 12, 2016 All families with DMD/BMD children, in the Kansas City area, are welcome to post.

Western New York Families

11 members Latest Activity: Jan 16, 2016 Families members of boys with DMD along with the boys themselves who are from the Western New York area.

FACES of South Texas

17 members Latest Activity: Jun 28, 2012 FACES stands for Families Advocating Connecting, Educating and Supporting. This outreach group is part of PPMD's official volunteer outreach…

Medication/Supplement Journals

59 members Latest Activity: Jan 29, 2016 A place to keep a journal of what
medication(s)/supplement(s) you are giving to your child.

Illinois FACES

15 members Latest Activity: Jan 15, 2016 A place to add suggestions, comments, ask questions or talk about anything with parents and caregivers in the Illinois FACES group.

Outliers - Intermediate between Duchenne & Becker MD

48 members Latest Activity: Dec 10, 2018 The reading frame rule holds true 90% of the time. There remains those 10% that does not fit dmd/bmd phenotype. There is a 3rd form that may be…

DUPLICATION in DMD

32 members Latest Activity: Feb 13, 2017 To bring closer the families with DUPLICATION which is Rare-most of all DMD mutations.

Duchenne Smiles

115 members Latest Activity: Feb 27, 2014 A Duchenne smile is a True smile, cannot be faked and exemplifies true enjoyment.

Digital for Duchenne

3 members Latest Activity: Jan 31, 2016 Have you Gone Digital with Creative Memories? Are you making StoryBooks and looking for a place to share your pages and get ideas?

SMDA

4 members Latest Activity: Jan 30, 2016 suncity as it is called,strats its project of creating a support system so as to help the DMD patints.,by way of early detection,physical therapy and…

Tactile Sensitivities

41 members Latest Activity: May 4, 2015 A group for all the families that have children with tactile sensitivities, to share experiences and tips on how to deal with the additional issues…