Ottawa families

6 members Latest Activity: Feb 3, 2016 DMD support for families in the Ottawa Canada area.

Canadian Families

55 members Latest Activity: May 16, 2018

DUPLICATION in DMD

32 members Latest Activity: Feb 13, 2017 To bring closer the families with DUPLICATION which is Rare-most of all DMD mutations.

Mom's Cafe

125 members Latest Activity: Oct 23, 2017 A group for Mom's who like to vent and talk about life with DMD kids

DMD RECIPE IDEAS

66 members Latest Activity: Feb 16, 2017

Medication/Supplement Journals

59 members Latest Activity: Jan 29, 2016 A place to keep a journal of what
medication(s)/supplement(s) you are giving to your child.

Adolescence (age 7-12)

121 members Latest Activity: Jul 12, 2018

Doctors and Other Medical Pros to End DMD/BMD

14 members Latest Activity: May 9, 2012 Let's gather together the medical community in this fight to end DMD/BMD and to provide a better and longer quality of life

Outliers - Intermediate between Duchenne & Becker MD

49 members Latest Activity: Jan 15 The reading frame rule holds true 90% of the time. There remains those 10% that does not fit dmd/bmd phenotype. There is a 3rd form that may be…

Duchenne Smiles

115 members Latest Activity: Feb 27, 2014 A Duchenne smile is a True smile, cannot be faked and exemplifies true enjoyment.

Christians with DMD/BMD

116 members Latest Activity: Feb 3, 2016

Tactile Sensitivities

41 members Latest Activity: May 4, 2015 A group for all the families that have children with tactile sensitivities, to share experiences and tips on how to deal with the additional issues…

Becker Parents

33 members Latest Activity: Dec 19, 2019

Cincinnati Children's Hospital Medical Center

193 members Latest Activity: Sep 17, 2015

For families who take their children to Cincinnati Children's Hospital for DMD/BMD  medical care.

Washington & Pacific Northwest Families

50 members Latest Activity: Jul 11, 2016 A place for families and friends living in Washington and the Pacific Northwest to connect.

Duchenne Parents

248 members Latest Activity: Nov 20, 2019

Research

68 members Latest Activity: Oct 24, 2015

Early Years (diagnois-age 6)

174 members Latest Activity: May 16, 2018

Duplications

73 members Latest Activity: Nov 20, 2019