Char Burke's Groups (19)

  • DUPLICATION in DMD

    32 members Latest Activity: Feb 13, 2017 To bring closer the families with DUPLICATION which is Rare-most of all DMD mutations.

  • Mom's Cafe

    125 members Latest Activity: Oct 23, 2017 A group for Mom's who like to vent and talk about life with DMD kids

  • Outliers - Intermediate between Duchenne & Becker MD

    48 members Latest Activity: Dec 10, 2018 The reading frame rule holds true 90% of the time. There remains those 10% that does not fit dmd/bmd phenotype. There is a 3rd form that may be…

  • Duchenne Smiles

    115 members Latest Activity: Feb 27, 2014 A Duchenne smile is a True smile, cannot be faked and exemplifies true enjoyment.

  • Christians with DMD/BMD

    116 members Latest Activity: Feb 3, 2016

  • Tactile Sensitivities

    41 members Latest Activity: May 4, 2015 A group for all the families that have children with tactile sensitivities, to share experiences and tips on how to deal with the additional issues…

Need help using this community site? Visit Ning's Help Page.

Members

Events

© 2019   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service