Idebenone

15 members Latest Activity: Feb 22, 2017

As one of the only supplements passing phase IIa with prove of safety and efficacy for our kids (450 mg daily)…

Dr. Kevin Flanigan - University Research Center, Utah

8 members Latest Activity: Aug 19, 2017 For all of you who see Dr. Flanigan as well.

Duplications

73 members Latest Activity: Jun 24

Living with Duchenne (age 18+)

63 members Latest Activity: Nov 13, 2019

DUPLICATION in DMD

32 members Latest Activity: Feb 13, 2017 To bring closer the families with DUPLICATION which is Rare-most of all DMD mutations.

Duchenne Parents

248 members Latest Activity: Nov 20, 2019