Bereaved Parents

18 members Latest Activity: May 3 For those who have lost a child.

Dr. Kevin Flanigan - University Research Center, Utah

8 members Latest Activity: Aug 19, 2017 For all of you who see Dr. Flanigan as well.

Marriages

86 members Latest Activity: Jan 21, 2013 How marriages are affected by DMD

Duchenne Smiles

115 members Latest Activity: Feb 27, 2014 A Duchenne smile is a True smile, cannot be faked and exemplifies true enjoyment.

DUPLICATION in DMD

32 members Latest Activity: Feb 13, 2017 To bring closer the families with DUPLICATION which is Rare-most of all DMD mutations.

Outliers - Intermediate between Duchenne & Becker MD

49 members Latest Activity: Jun 24 The reading frame rule holds true 90% of the time. There remains those 10% that does not fit dmd/bmd phenotype. There is a 3rd form that may be…

Medication/Supplement Journals

59 members Latest Activity: Jan 29, 2016 A place to keep a journal of what
medication(s)/supplement(s) you are giving to your child.

Cincinnati Children's Hospital Medical Center

193 members Latest Activity: Sep 17, 2015

For families who take their children to Cincinnati Children's Hospital for DMD/BMD  medical care.

Christians with DMD/BMD

116 members Latest Activity: Feb 3, 2016

Off Topic

33 members Latest Activity: Aug 6, 2010 A place to share things in our lives that are not necessarily related to DBMD.

DMD RECIPE IDEAS

66 members Latest Activity: Feb 16, 2017

Carrier Moms

132 members Latest Activity: Mar 16, 2016 For moms who are carriers of Duchenne

Illinois/Missouri Families

33 members Latest Activity: Apr 24, 2017 This group is for families from Illinois and Missouri

DMD/BMD Siblings

38 members Latest Activity: Jun 22, 2017 Siblings of those who have DMD or BMD.

Adolescence (age 7-12)

119 members Latest Activity: Jul 12, 2018

Duchenne Parents

248 members Latest Activity: Nov 20, 2019

Duplications

73 members Latest Activity: Jun 24

Ambulatory

62 members Latest Activity: Apr 23, 2012