Outliers - Intermediate between Duchenne & Becker MD

49 members Latest Activity: Jun 24, 2020 The reading frame rule holds true 90% of the time. There remains those 10% that does not fit dmd/bmd phenotype. There is a 3rd form that may be…

Medication/Supplement Journals

59 members Latest Activity: Jan 29, 2016 A place to keep a journal of what
medication(s)/supplement(s) you are giving to your child.

Duchenne Smiles

114 members Latest Activity: Feb 27, 2014 A Duchenne smile is a True smile, cannot be faked and exemplifies true enjoyment.

Tactile Sensitivities

41 members Latest Activity: May 4, 2015 A group for all the families that have children with tactile sensitivities, to share experiences and tips on how to deal with the additional issues…

Lose to Cure MD

14 members Latest Activity: Dec 16, 2012 Pledge to donate $1 per pound of weight lost to PPMD Research. Let's motivate each other to lose weight and be healthier and raise money for PPMD at…

NEW ENGLAND FAMILIES

41 members Latest Activity: Feb 13, 2017 A PLACE FOR FAMILIES FROM NE TO MEET

Exon Deletion 3-7

29 members Latest Activity: Nov 2, 2018 Connect with other families with exon deletion 3-7.

Ambulatory

62 members Latest Activity: Apr 23, 2012

Duchenne Parents

247 members Latest Activity: Nov 20, 2019

Deletions

237 members Latest Activity: Feb 3, 2017

Carrier Moms

132 members Latest Activity: Mar 16, 2016 For moms who are carriers of Duchenne

Cincinnati Children's Hospital Medical Center

193 members Latest Activity: Sep 17, 2015

For families who take their children to Cincinnati Children's Hospital for DMD/BMD  medical care.