FACES of New Jersey

57 members Latest Activity: Apr 28, 2018

FACES of New Jersey- Families Advocating, Connecting, Educating and Supporting

Grief and Loss

18 members Latest Activity: Jan 15, 2016 For any parent that needs to discuss those fellings of grief and loss

Ohio Families

26 members Latest Activity: Nov 17, 2018

New York Families

44 members Latest Activity: Feb 18, 2015

Discussion group for families in New York on fundraising events, care, advocacy.

Duchenne Smiles

114 members Latest Activity: Feb 27, 2014 A Duchenne smile is a True smile, cannot be faked and exemplifies true enjoyment.

San Francisco Bay Area Families

27 members Latest Activity: Feb 22, 2013

PTC124 Phase 2a Extension Study Families

24 members Latest Activity: Jan 19, 2016 This group is intended to be for families of the 38 boys who participated in the clinical trial of PTC124 phase 2a, to be able to share with each…

Single and dealing with DMD

30 members Latest Activity: Feb 13, 2017 This group is for anyone that is or about to be single, and their families with DMD/BMD.

Bereaved Parents

18 members Latest Activity: May 3, 2020 For those who have lost a child.

Teens with DMD-no parents allowed:)

9 members Latest Activity: Jun 24, 2020

Mom's Cafe

123 members Latest Activity: Oct 8, 2020 A group for Mom's who like to vent and talk about life with DMD kids

Cincinnati Children's Hospital Medical Center

193 members Latest Activity: Sep 17, 2015

For families who take their children to Cincinnati Children's Hospital for DMD/BMD  medical care.

Family and Friends Who Support Us With DMD/BMD

11 members Latest Activity: May 16, 2016 A place for family and friends to discuss issues and learn more about what we face day to day

Doctors and Other Medical Pros to End DMD/BMD

14 members Latest Activity: May 9, 2012 Let's gather together the medical community in this fight to end DMD/BMD and to provide a better and longer quality of life

Living with Duchenne (age 18+)

63 members Latest Activity: Nov 13, 2019

DMD RECIPE IDEAS

66 members Latest Activity: Feb 16, 2017

Off Topic

33 members Latest Activity: Aug 6, 2010 A place to share things in our lives that are not necessarily related to DBMD.

Carrier Moms

132 members Latest Activity: Mar 16, 2016 For moms who are carriers of Duchenne

Non-Ambulatory

43 members Latest Activity: May 16, 2016

Allies

5 members Latest Activity: Jan 15, 2016 Friends of boys with Duchenne