57 members
Latest Activity: Apr 28, 2018
FACES of New Jersey- Families Advocating, Connecting, Educating and Supporting
18 members Latest Activity: Jan 15, 2016 For any parent that needs to discuss those fellings of grief and loss
26 members Latest Activity: Nov 17, 2018
44 members
Latest Activity: Feb 18, 2015
Discussion group for families in New York on fundraising events, care, advocacy.
114 members Latest Activity: Feb 27, 2014 A Duchenne smile is a True smile, cannot be faked and exemplifies true enjoyment.
27 members Latest Activity: Feb 22, 2013
24 members Latest Activity: Jan 19, 2016 This group is intended to be for families of the 38 boys who participated in the clinical trial of PTC124 phase 2a, to be able to share with each…
30 members Latest Activity: Feb 13, 2017 This group is for anyone that is or about to be single, and their families with DMD/BMD.
18 members Latest Activity: May 3, 2020 For those who have lost a child.
9 members Latest Activity: Jun 24, 2020
123 members Latest Activity: Oct 8, 2020 A group for Mom's who like to vent and talk about life with DMD kids
193 members
Latest Activity: Sep 17, 2015
For families who take their children to Cincinnati Children's Hospital for DMD/BMD medical care.
11 members Latest Activity: May 16, 2016 A place for family and friends to discuss issues and learn more about what we face day to day
14 members Latest Activity: May 9, 2012 Let's gather together the medical community in this fight to end DMD/BMD and to provide a better and longer quality of life
63 members Latest Activity: Nov 13, 2019
66 members Latest Activity: Feb 16, 2017
33 members Latest Activity: Aug 6, 2010 A place to share things in our lives that are not necessarily related to DBMD.
132 members Latest Activity: Mar 16, 2016 For moms who are carriers of Duchenne
43 members Latest Activity: May 16, 2016
5 members Latest Activity: Jan 15, 2016 Friends of boys with Duchenne
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