Patient Specific Exon Skipping -NOW!

24 members Latest Activity: Apr 5, 2016

Pushing forward a venture that will concentrate on that.

EXON 11 SKIPPING Group

4 members Latest Activity: May 30, 2016

Hi everyone.

I am creating  this group for a simple reason for finding all the children who require exon 11 Skipping.…

India

30 members Latest Activity: Jan 15, 2020 For folks to share information about any research happening in India for Duchenne.

Duchenne Smiles

115 members Latest Activity: Feb 27, 2014 A Duchenne smile is a True smile, cannot be faked and exemplifies true enjoyment.

Medication/Supplement Journals

59 members Latest Activity: Jan 29, 2016 A place to keep a journal of what
medication(s)/supplement(s) you are giving to your child.

Cincinnati Children's Hospital Medical Center

193 members Latest Activity: Sep 17, 2015

For families who take their children to Cincinnati Children's Hospital for DMD/BMD  medical care.

Duchenne Parents

248 members Latest Activity: Nov 20, 2019

Families from the Maryland, D.C., Virginia area

28 members Latest Activity: Dec 19, 2019

Deletions

237 members Latest Activity: Feb 3, 2017