David's Groups (6)

  • Families in Pennsylvania

    45 members Latest Activity: Feb 20, 2015 Group where families in the Pennsylvania or sorrounding area can colloborate

  • Idebenone

    15 members Latest Activity: Feb 22, 2017

    As one of the only supplements passing phase IIa with prove of safety and efficacy for our kids (450 mg daily)…

  • Exon 17 skipping

    4 members Latest Activity: Jan 29, 2016

    Only 1.9% in the cases of exon deletion;

    Only 1.9% opportunity for receiving treatment;

    Let's join hands for our sons' future !

  • Deletions

    237 members Latest Activity: Feb 3, 2017

  • exon 46-50 deletion

    14 members Latest Activity: Apr 16, 2017 For group of families having exon 46 to 50 deletion.

  • Exon Deletion 3-7

    27 members Latest Activity: Apr 10 Connect with other families with exon deletion 3-7.

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