Ohio Families

26 members Latest Activity: Nov 17, 2018

PTC124 Phase 2a Extension Study Families

24 members Latest Activity: Jan 19, 2016 This group is intended to be for families of the 38 boys who participated in the clinical trial of PTC124 phase 2a, to be able to share with each…

Dad's Only

52 members Latest Activity: Apr 3, 2016 Become leaders in our community, Build a stronger bond between fathers and their children, Enjoy the rewards, that being a father involved in your…

ataluren trial following up

13 members Latest Activity: May 13, 2016 discussion about what we have to do

Premature Stop Codon

76 members Latest Activity: Jul 5, 2016

Christians with DMD/BMD

116 members Latest Activity: Feb 3, 2016

PTC 124-2b Clinical Trial

31 members Latest Activity: May 1, 2018 Various issues re: PTC 124 Clinical Trials for current or prospective participants worldwide

Cincinnati Children's Hospital Medical Center

193 members Latest Activity: Sep 17, 2015

For families who take their children to Cincinnati Children's Hospital for DMD/BMD  medical care.