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My son is 22 months now and was diagnosed 6 months ago. He has deletion of exons 3-30, that is in-frame. But because he is missing nearly 1…
Started by Simone & Elias
My son just turned 9 and is starting to get frustrated at not being able to run as fast as his friends. I am planning on addressing the is…
Started by Regina
Has anyone heard anything about Utrophin trials and what is happening with that. I feel like the Duchenne world is moving forward which I a…
Started by Eliane Khoury
My nephew also has a inframe deletion, his deletion is 8-21 but his phenotype is Duchenne, what I cant understand is why their body doesnt…
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