PPMD Community

Aussies - Duchenne Foundation Discussions (6)

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Discussions	Replies	Latest Activity
Early Date Claimer - Riding the Wave ~ 2012 Start saving up for our next joint National Conference 5-6 October, 2012. Venue = Bond University, Gold Coast, Queensland. Our conference… Started by Deb Robins	0	Dec 10, 2011
Events - October 2009 First, our online chat with Annemieka Aarstma-Rus, registered in PPMD community events. Full info ... The big event - our Sydney Blueball… Started by Deb Robins	3	Oct 2, 2010 Reply by Deb Robins
National Registry Our advocacy for infrastructure for a national registry and countrywide fine mapping, which would allow us to mesh wholesale with the globa… Started by Deb Robins	3	Sep 20, 2009 Reply by Deb Robins
Please watch and pass on - my poem to my son. I wrote this for my 4 year old son James, late last year. On March 7th (last Saturday), my husband headed off on a mammoth bike ride from S… Started by Sharyn Thompson	0	Mar 10, 2009
Carer's Submissions You may be aware that the new Commonwealth Government is conducting an inquiry into BETTER SUPPORT FOR CARERS who care for those with chron… Started by Deb Robins	1	Jul 30, 2008 Reply by Deb Robins
The Tour Duchenne - Sydney to Melbourne Bike Ride This post is for any Australians or Singaporeans, or anyone interested in helping to raise money for research to find a cure for DMD. I am… Started by Sharyn Thompson	1	Jul 30, 2008 Reply by Deb Robins