Dream Auction Volunteers

7 members Latest Activity: May 22, 2010

exon 46-50 deletion

9 members Latest Activity: Dec 10, 2011 For group of families having exon 46 to 50 deletion.

Patient Specific Exon Skipping -NOW!

17 members Latest Activity: Apr 18

Pushing forward a venture that will concentrate on that.

San Francisco Bay Area Families

26 members Latest Activity: Apr 28

Marriages

84 members Latest Activity: Jan 7 How marriages are affected by DMD

DMD/BMD Siblings

35 members Latest Activity: Feb 22 Siblings of those who have DMD or BMD.

Exon skipping 53

5 members Latest Activity: Mar 4

Hi,

My son has deletion 48-52 and need 53 skipped. Want to get in touch with any one who needs 53 skipped.

Thanks,

Amrit

Splice Site Mutation

2 members Latest Activity: Jul 19, 2011 Anyone who has a Splice Site Mutation.

Older men with Duchenne's (18 +)

8 members Latest Activity: Dec 8, 2010 For older men affected with DMD, and people living with older guys, its not just the parents living with DMD. This is a place for us older guys who…

Outliers - Intermediate between Duchenne & Becker MD

32 members Latest Activity: Apr 27 The reading frame rule holds true 90% of the time. There remains those 10% that does not fit dmd/bmd phenotype. There is a 3rd form that may be…

SMDA

3 members Latest Activity: Mar 12, 2009 suncity as it is called,strats its project of creating a support system so as to help the DMD patints.,by way of early detection,physical therapy and…

Deletion of exon 51

14 members Latest Activity: Apr 17 For the parents of boys with a deletion of exon 51.

Ottawa families

5 members Latest Activity: Nov 26, 2010 DMD support for families in the Ottawa Canada area.

Alabama Families

8 members Latest Activity: Jul 31, 2011 Families and friends in Sweet Home Alabama

North Carolina/South Carolina Families

15 members Latest Activity: Jun 27, 2011 A group for families living in North and South Carolina

PTC124 Phase 2a Extension Study Families

22 members Latest Activity: Sep 2, 2011 This group is intended to be for families of the 38 boys who participated in the clinical trial of PTC124 phase 2a, to be able to share with each…

Carrier Moms

110 members Latest Activity: May 9 For moms who are carriers of Duchenne

Massachusetts Families

19 members Latest Activity: Apr 10

California Families

75 members Latest Activity: Mar 22 This group is for families living in CA.

Grandparents

34 members Latest Activity: Feb 8