Community Discussion about Corticosteroid Side Effects/Benefits

28 members Latest Activity: Jan 23, 2015

This group will meet for about a week to help the DuchenneConnect team understand in more detail the side effects and benefits that families and…

Dream Auction Volunteers

7 members Latest Activity: May 22, 2010

2018 PPMD Annual Conference

6 members Latest Activity: Jun 13, 2018

Connect with other 2018 PPMD Annual Conference attendees.

Step Mum's to kids with B/DMD

4 members Latest Activity: Feb 1, 2018 Just a group to hear from other step mums about their experiences. Living full time with step kids or part time, dealing with the biological mums in…

Advisory Committee Group

30 members Latest Activity: Oct 16, 2019

Exon skipping 53

19 members Latest Activity: Jun 16, 2018

Hi,

My son has deletion 48-52 and need 53 skipped. Want to get in touch with any one who needs 53 skipped.

Thanks,

Amrit

Lose to Cure MD

14 members Latest Activity: Dec 16, 2012 Pledge to donate $1 per pound of weight lost to PPMD Research. Let's motivate each other to lose weight and be healthier and raise money for PPMD at…

Bereaved Parents

18 members Latest Activity: May 3, 2020 For those who have lost a child.

Exon Deletion 3-7

29 members Latest Activity: Nov 2, 2018 Connect with other families with exon deletion 3-7.

2019 PPMD Annual Conference

2 members Latest Activity: Apr 22, 2019

Connect with other 2019 PPMD Annual Conference attendees.

Gapko Survey Development

4 members Latest Activity: Aug 4, 2015

This group is formed to assist in development of a survey to determine the information needs of young adults (age 14 and older) with DBMD.

Qatar DMD group

4 members Latest Activity: Apr 6, 2016

God Bless you.

Dear I am creating this group to be in touch with parents of DMD (Duchenne Muscular Dystrophy) within…

NOVA parents

4 members Latest Activity: Jan 18, 2016 I'm hoping to connect with some other parents in the Northern VA area... Anybody out there?

Hispanic and Latino Families with Duchenne

4 members Latest Activity: Dec 12, 2017

Support group for families in Latin America with family members with Duchenne. This is a bilingual group English and…

Ataluren (PTC)

1 member Latest Activity: Jan 22, 2013

United Arab Emirates Femilies

2 members Latest Activity: Oct 8, 2012

To join the all DMD families together

MD In Kenya

2 members Latest Activity: Jan 18, 2016 I am looking to meet families afflicted or affected by DMD in Kenya,East Africa.So if you are out there and would like to join hands,come over with…

Duchenne MD & Autism Spectrum Disorder

10 members Latest Activity: Jan 18, 2016 Patients living with DMD & Autism Spectrum Disorder. 

Splice Site Mutation

3 members Latest Activity: Aug 21, 2012 Anyone who has a Splice Site Mutation.

Exon 17 skipping

4 members Latest Activity: Jan 29, 2016

Only 1.9% in the cases of exon deletion;

Only 1.9% opportunity for receiving treatment;

Let's join hands for our sons' future !