6 members
63 members
174 members
121 members
Sort by:
28 members
Latest Activity: Jan 23, 2015
This group will meet for about a week to help the DuchenneConnect team understand in more detail the side effects and benefits that families and…
7 members Latest Activity: May 22, 2010
6 members
Latest Activity: Jun 13, 2018
Connect with other 2018 PPMD Annual Conference attendees.
4 members Latest Activity: Feb 1, 2018 Just a group to hear from other step mums about their experiences. Living full time with step kids or part time, dealing with the biological mums in…
30 members Latest Activity: Oct 16, 2019
19 members
Latest Activity: Jun 16, 2018
Hi, My son has deletion 48-52 and need 53 skipped. Want to get in touch with any one who needs 53 skipped. Thanks, Amrit
13 members Latest Activity: Dec 1, 2021
14 members Latest Activity: Dec 16, 2012 Pledge to donate $1 per pound of weight lost to PPMD Research. Let's motivate each other to lose weight and be healthier and raise money for PPMD at…
18 members Latest Activity: May 3, 2020 For those who have lost a child.
29 members Latest Activity: Nov 2, 2018 Connect with other families with exon deletion 3-7.
2 members
Latest Activity: Apr 22, 2019
Connect with other 2019 PPMD Annual Conference attendees.
4 members
Latest Activity: Aug 4, 2015
This group is formed to assist in development of a survey to determine the information needs of young adults (age 14 and older) with DBMD.
4 members
Latest Activity: Apr 6, 2016
God Bless you. Dear I am creating this group to be in touch with parents of DMD (Duchenne Muscular Dystrophy) within…
4 members Latest Activity: Jan 18, 2016 I'm hoping to connect with some other parents in the Northern VA area... Anybody out there?
4 members
Latest Activity: Dec 12, 2017
Support group for families in Latin America with family members with Duchenne. This is a bilingual group English and…
1 member Latest Activity: Jan 22, 2013
2 members
Latest Activity: Oct 8, 2012
To join the all DMD families together
2 members Latest Activity: Jan 18, 2016 I am looking to meet families afflicted or affected by DMD in Kenya,East Africa.So if you are out there and would like to join hands,come over with…
10 members Latest Activity: Jan 18, 2016 Patients living with DMD & Autism Spectrum Disorder.
3 members Latest Activity: Aug 21, 2012 Anyone who has a Splice Site Mutation.
© 2023 Created by PPMD.
Powered by
Badges | Report an Issue | Privacy Policy | Terms of Service