PPMD Community

Featured Groups

All Groups (126)

  • FACES of New Jersey

    57 members Latest Activity: May 3

    FACES of New Jersey- Families Advocating, Connecting, Educating and Supporting

  • Duplications

    71 members Latest Activity: Feb 10

  • Gapko Survey Development

    4 members Latest Activity: Aug 4, 2015

    This group is formed to assist in development of a survey to determine the information needs of young adults (age 14 and older) with DBMD.

  • Qatar DMD group

    4 members Latest Activity: Apr 6, 2016

    God Bless you.

    Dear I am creating this group to be in touch with parents of DMD (Duchenne Muscular Dystrophy) within…

  • NOVA parents

    4 members Latest Activity: Jan 18, 2016 I'm hoping to connect with some other parents in the Northern VA area... Anybody out there?

  • Hispanic and Latino Families with Duchenne

    3 members Latest Activity: Aug 11, 2016

    Support group for families in Latin America with family members with Duchenne. This is a bilingual group English and…

  • MD In Kenya

    2 members Latest Activity: Jan 18, 2016 I am looking to meet families afflicted or affected by DMD in Kenya,East Africa.So if you are out there and would like to join hands,come over with…

  • Duchenne MD & Autism Spectrum Disorder

    10 members Latest Activity: Jan 18, 2016 Patients living with DMD & Autism Spectrum Disorder. 

  • Splice Site Mutation

    3 members Latest Activity: Aug 21, 2012 Anyone who has a Splice Site Mutation.

  • Exon 17 skipping

    4 members Latest Activity: Jan 29, 2016

    Only 1.9% in the cases of exon deletion;

    Only 1.9% opportunity for receiving treatment;

    Let's join hands for our sons' future !

  • EXON 11 SKIPPING Group

    4 members Latest Activity: May 30, 2016

    Hi everyone.

     

    I am creating  this group for a simple reason for finding all the children who require exon 11 Skipping.…

  • Atlantic Canada Families

    9 members Latest Activity: Jan 23 a forum where families from Atlantic Canada can discuss local issues

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