Featured Groups

All Groups (129)

  • 2018 PPMD Annual Conference

    6 members Latest Activity: Jun 13

    Connect with other 2018 PPMD Annual Conference attendees.

  • Step Mum's to kids with B/DMD

    4 members Latest Activity: Feb 1 Just a group to hear from other step mums about their experiences. Living full time with step kids or part time, dealing with the biological mums in…

  • Exon skipping 53

    19 members Latest Activity: Jun 16

    Hi,

    My son has deletion 48-52 and need 53 skipped. Want to get in touch with any one who needs 53 skipped.

    Thanks,

    Amrit

  • India

    29 members Latest Activity: Nov 27 For folks to share information about any research happening in India for Duchenne.

  • Lose to Cure MD

    14 members Latest Activity: Dec 16, 2012 Pledge to donate $1 per pound of weight lost to PPMD Research. Let's motivate each other to lose weight and be healthier and raise money for PPMD at…

  • Exon Deletion 3-7

    29 members Latest Activity: Nov 2 Connect with other families with exon deletion 3-7.

  • Gapko Survey Development

    4 members Latest Activity: Aug 4, 2015

    This group is formed to assist in development of a survey to determine the information needs of young adults (age 14 and older) with DBMD.

  • Qatar DMD group

    4 members Latest Activity: Apr 6, 2016

    God Bless you.

    Dear I am creating this group to be in touch with parents of DMD (Duchenne Muscular Dystrophy) within…

  • NOVA parents

    4 members Latest Activity: Jan 18, 2016 I'm hoping to connect with some other parents in the Northern VA area... Anybody out there?

  • Hispanic and Latino Families with Duchenne

    4 members Latest Activity: Dec 12, 2017

    Support group for families in Latin America with family members with Duchenne. This is a bilingual group English and…

  • MD In Kenya

    2 members Latest Activity: Jan 18, 2016 I am looking to meet families afflicted or affected by DMD in Kenya,East Africa.So if you are out there and would like to join hands,come over with…

  • Duchenne MD & Autism Spectrum Disorder

    10 members Latest Activity: Jan 18, 2016 Patients living with DMD & Autism Spectrum Disorder. 

  • Splice Site Mutation

    3 members Latest Activity: Aug 21, 2012 Anyone who has a Splice Site Mutation.

  • Exon 17 skipping

    4 members Latest Activity: Jan 29, 2016

    Only 1.9% in the cases of exon deletion;

    Only 1.9% opportunity for receiving treatment;

    Let's join hands for our sons' future !

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