Well, you aren't alone! We just found our 7 year old one and he went for his first visit a week ago. She seems great and has a lot of great ideas. She doesn't have any experience with DMD boys, but does with kids who are facing an illness. She is giving us some great tips for school.
We live in Rochester so our therapist wouldn't work for you. We asked our pediatrician for a recommendation and we found from there! Our clinic wouldn't help recommend us so we thought maybe we were alone in needing a counselor!
Also, Brayden's counselor in school brought him down to a self esteem group that he loved going too! It wasn't just DMD boys obviously so he got to see that he isn't the only one facing challenges daily.
Thanks, sometimes just knowing you are not alone helps so much.
Ben is seeing his school counselor too, she is wonderful, but it is still more for social interactions and being a part of school. We recently talked with Ben about some of the not so easy topics of this disease, including life expectancy, and it, of course, impacted him hard. He is having trouble expressing his feelings, and seems to be keeping it all in. I don't ever want this disease to stop him from being a happy boy that can live his life to the fullest. We are going to the peditrician this week to get referrals as well. I hope that we can find someone that works for our family.