The Pakistan Muscular Dystrophy Meetup

Information

The Pakistan Muscular Dystrophy Meetup

Meet with other local people who suffer from Muscular Dystrophy of all forms. Gather for treatment advice, support, and companionship. Friends and family are welcome!

Website: http://md.meetup.com/3/
Location: Pakistan
Members: 5
Latest Activity: Feb 3, 2016

Please let those who can be helped know about this

Meet with other local people who suffer from Muscular Dystrophy of all forms. Gather for treatment advice, support, and companionship.

We welcome anyone who has muscular dystrophy as well as their friends and family. Clinicians & therapists taking care of muscular dystrophy patients can also attend

A lot needs to be done in terms of raising awareness about muscular dystrophy (md) and to bring patients suffering from md into the mainstream. All over the world, patients themselves are the best advocates for their own special needs

The aims and objectives of the Pakistan Muscular Dystrophy Support Meetup Group are as follows:

1. Bring together muscular dystrophy patients, not necessarily limited to those in Pakistan alone, on a single platform in order to create an advocacy group that can demand and ensure acceptance, provision of privileges and a level playing field in society

2. To create an md patient self-help group that can learn from shared experiences and resources

3. To inform these patients about their respective diagnoses and all the possible therapeutic, adaptive and rehabilitative strategies and resources available both locally as well as internationally

4. To facilitate rapid exchange of information between the west and Pakistan

5. To keep md patients in touch with the latest research and innovative therapies originating in the west

Comment Wall

Comment

You need to be a member of The Pakistan Muscular Dystrophy Meetup to add comments!

Comment by Aun Bin Yousuf on June 18, 2015 at 12:13pm

is this group dead ?

 

Members (5)

 
 
 

Need help using this community site? Visit Ning's Help Page.

Members

Events

© 2020   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service