Started by Julie Gilmore. Last reply by Denise Gionet Sep 20, 2010. 7 Replies 0 Favorites
Started by Karen Barnett. Last reply by Susan Nantais May 1, 2009. 2 Replies 0 Favorites
Started by Julie Gilmore. Last reply by Cathie Bullis Apr 3, 2009. 1 Reply 0 Favorites
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My son has a deletion of exons 49 and 50. He was diagnosed with Autism a couple of years prior to the DMD diagnosis, and some of the signs of DMD were thought to be a result of the Autism (toe walking, delayed gross motor skills). He is currently 12 and is having a lot of emotional difficulties in adjusting to life in his wheelchair. I am at a loss on how to explain everything to him in a way that doesn't send him into full blown meltdown mode, and how to help him through this very difficult time. Do any of you have any past experiences to share or advice?
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