Comment

Comment by Cheryl Markey on January 25, 2009 at 6:58pm

Hello, everyone! Hey, go check my family out on my page! New Fundraiser started today "Scents for Duchenne" you can learn more about it under fundraising in the discussions!
Hope all has been well with you and your love ones this past week!

God Bless,
Cheryl

Comment by Jessica on August 13, 2008 at 3:44pm

I saved my sons cord blood with viacord. I called the company and unfortunately they are not working to cure muscular dystrophy.
However if the cord blood can assist in anyway to researchers I would like to know where.
When you are visiting with Doctors across the country please ask them if cord blood is of any interest to them.
My thinking is that maybe they can use the stem cells to figure out how to correct the mutation on the cord blood. He has a deletion of exon 13 in frame. If anyone knows of any clinics using cord blood to research md, please let me know.
I have already been to Harvard Boston Childrens and they told me that the cord blood could be useful for research, but they don't have enough NIH funding.

Comment by Connor's Dad - Brian on June 21, 2008 at 10:07am

We hope to learn the latest in Gene Therapy treatments at the PPMD conference in Philadephia on the 17th thru 20th of July.