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North Carolina/South Carolina Families

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North Carolina/South Carolina Families

A group for families living in North and South Carolina

Members: 15
Latest Activity: Jun 27, 2011

Hi Everyone,
I hope this will be a place where NC and SC families can discuss useful information that will help our sons. Everything from clinic experiences to navigating the state system for getting help for our boys. And of course fun, accessible activities and places to visit.

Discussions

Dr. Wong

Started by Angie Doub. Last reply by Angie Doub Jan 7, 2011. 3 Replies

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Comment by Kim Innabi on June 27, 2011 at 11:05pm

Hi Everyone, we are going to be moving to Charlotte (Waxhaw) in August.  We live in California right now and are excited to be moving to NC.  My son with DMD is going to be 15 in Sept.  I hope to meet some of you that live close by!!!

Comment by Jacobs Mommom on December 30, 2010 at 1:11pm
Mindy Cameron is looking for a family from NC that might be willing to do go on a local TV station and talk about Duchenne. If any one is willing please email me at donna@donnadoolittle.com and put Duchenne and TV in the subject line.
Comment by Julie Hathaway on November 10, 2009 at 10:50am
Hey! Give me a call, Grammy. My number is 864-254-9190. We live in Greenville, SC. I've met some wonderful families in your area. Would love to talk with you. My son, Brandon is 7 years old. We see Dr. Wong as well and will be heading up there in January. Would love to chat.
Comment by Pat Nivens on November 10, 2009 at 4:48am
I am Grammy to 8 year old Brady. He was diagnosed with DMD four years ago. We live in Kings Mountain, NC near Charlotte and 10 miles from SC. Have not found anyone in my area to talk to. Brady sees Dr Wong every 6 months at the Cincinnatti Childrens Hospital in Ohio.
Comment by Susan Nantais on August 10, 2009 at 11:04pm
Lisa send me your email address and I will send you the picture from the Muscle Team night of your family. susnant@aol.com
Comment by Julie Hathaway on August 9, 2009 at 9:51pm
Lisa,
Thanks so much for adding S.C. families! I wonder if there are any other families out there near us here in Greenville, S.C. Would love to "meet" you all.
Comment by Lisa Tepper on June 24, 2009 at 2:06pm
I am going. Tom is staying home. We just returned from vacation and he felt he couldn't be away from work this week. Emily - I would love to meet you as well. I'll be arriving sometime around noon.
Comment by Kristen McSwain on June 23, 2009 at 9:02pm
I was so happy when I found out it would be in Atlanta this year! But I am traveling for work and can't make it :-(. We last went in 2007. Please pass on any god info!
Comment by Emily Pritchard on June 23, 2009 at 8:12pm
I will be there, Lisa. Will you be attending? Would love to meet you!
Comment by Will Farr on June 23, 2009 at 10:34am
Lisa - We will not be going this weekend. Too many other summer commitments. I thought it was fantastic last year. If you are going again, I hope that you and Tom have a great experience. Please provide an update afterwards if you do attend. Will
 

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