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2013 Advocacy:Fellow NY Yorkers! We really need your help to re-authorze the MD care act. Please read Ryan's blog and click on the survey link to make… Started by Christine PiacentinoLatest Reply |
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looking for Duchennes traveling nurseI have an idea that if I could provide a consultation for family members regarding adult Duchennes nursing expectations and care, that migh… Started by Sharon Wood |
0 | Jan 22, 2015 |
Location of all the FamiliesHi Everyone,I noticed we have quite a few members in this group. Could you all provide a general location of where you live, we have a few… Started by Christine Piacentino |
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Sep 29, 2014 Reply by Sharon Wood |
2013 Advocacy:Fellow NY Yorkers! We really need your help to re-authorze the MD care act. Please read Ryan's blog and click on the survey link to make… Started by Christine Piacentino |
2 |
Feb 3, 2013 Reply by Christine Piacentino |
Western NY Foundation InformationEveryone, Thought you might also be interested in this organization: Please check out The Independence Foundation. This is an organizatio… Started by Christine Piacentino |
0 | Jul 19, 2011 |
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