Discussions Replies Latest Activity

Any Families Near Springfield MA?

Hi Everyone,   There is a new family near Springfield MA looking to connect with some Duchenne Families, any of you near there?  This famil…

Started by Christine Piacentino

0 Aug 6, 2010

Fund-Raiser in the Seacoast Area

If anyone is around the seacoast area this weekend, we are hosting a HUGE Yard Sale, Silent Auction and Bake Sale at the Newfields Town Hal…

Started by Linda Currier

3 Oct 3, 2009
Reply by Joanne Haswell

Boston Area Families interest in a "play group."

I know I sent this message to the group and I apologize now for the cross posting, I am very new to the group. I really wanted this to be a…

Started by Anne Hancock

2 May 22, 2009
Reply by Anne Hancock

Waiting on the Sun - Play

Wayne J Keeley as produced a play called Waiting on the Sun. It is playing in Danbury CT on Saturday, May 30, 2009 at 8:00pm, Sunday, May 3…

Started by Julie Garcia

0 May 18, 2009

Developmental Delays

Can anyone give me some idea of developmental delays your DMD kids may have faced? Keelan is 16 mos. old and at a 10-11 mos. level with fin…

Started by Kathy

5 Mar 7, 2009
Reply by jenn

Any one interesting in helping with a community TV Spot

Hi Everyone, Most of you know that I grew up in Bedford NH and I now live just outside of Rochester, NY. However a long time friend of mine…

Started by Christine Piacentino

3 Jan 13, 2009
Reply by Eileen DeLong


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