I wish I had the right words to express how to really take care of yourself...especially if you are a single parent. It's not easy. As your boys grow older and you might have less support from family and friends, you will find how exhausting mentally, physically and emotionally it will get. As least it was to late for me.
I use to live in the area where there was NOTIHING for children with disabilities. Now that we are in the Gainesville area, we are finally getting respite care and Home health. Thank god. but often just not enough at times. I desperately need to take a break. Go away for a few days or more. Tim's dad, Victor, who has pretty much I can say has abandoned Tim due to his own high ego. The man lives in a million dollar house, makes good money, and yet he owes almost $15,000 in child support. Knowing the situation, he chooses not to come down here to spend time with Tim or chooses not to have Tim spend time with him in Maryland. He claims that he will be willing to pay someone to stay with Tim, only to back out of the promise and had the nerve to later tell me that I don't deserve a break since Tim can "die at any time and I need to be there when he does."
I have been under so much stresss, with Tim in and out of the hospital this summer (4x's now). Then the other night, I discoverd a lump on my left breast. Ok...I have alot going but now this?! Why now? Why me? This is just not right! I'm not sure what more I can handle. I'm so exhausted, to tired to fight now. I don't have the energy anymore. I would like at least 4-5 days to myself, but now I have to deal with my own illness for maybe my own survivor.