Mom's Cafe Discussions (12)

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Facebook Parents of DMD Support Group

Started by Jessica Argueta Tucker

0 Mar 14, 2012

Our other children

Well here i am again. A mother of a child with Duchenne. Yet at this point my main struggle is not with my child inflicted with this horrib…

Started by Geraldine Coolidge

4 Mar 7, 2012
Reply by Grace Marks

Muscle Clinic

Can someone please tell me what to expect from our first muscle clinic. I know its only been a couple weeks since his diagnoses, but I feel…

Started by Geraldine Coolidge

4 Feb 20, 2012
Reply by Trinh Nguyen

how to make my son understand ?

Hi everyone its been a while since I've posted anything but I'm really feeling down and sad for my son not sad has in pity but has in why h…

Started by jessica santini

5 Dec 15, 2011
Reply by Grace Marks

Finding Time for Yourself

I wish I had the right words to express how to really take care of yourself...especially if you are a single parent. It's not easy. As your…

Started by Dee

6 Jun 17, 2011
Reply by Leigh Alisen Pernosky

Trying to answer you!

Hi, its Donna again. I have had 4 responses to my request for participation in my research. I cannot locate the comments. Still trying to n…

Started by Donna Gluck

2 Dec 18, 2009
Reply by Donna Gluck

A Cookbook for PPMD

Anyone interested in working with me in putting together a delightful cookbook to raise money for PPMD??? I just completed one cookbook th…

Started by Dee

1 Oct 11, 2009
Reply by Dee

what do you tell other kids about DMD

Yesterday during our 4th celebration, our son Will, was trying to keep up with the other kids biking, scootering and skate boarding. One of…

Started by Char Burke

10 Jul 21, 2009
Reply by Danielle L Shoupe

Refreshing the Mind & Spirit

I guess I could have written this in my blog instead of here on this discussion board. As much as I blog, I should blog it but I'll just po…

Started by Dee

4 Apr 22, 2009
Reply by Kathy

Super Mighty Mom...syndrome

Sometimes as a mom (or caregiver), we have our own issues to deal with. Whether it be our own illnesses, depression, or even a job putting…

Started by Dee

1 Apr 9, 2009
Reply by Rosanna Ouellette


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