Hey everyone. I was wondering if anyone has any ideas/directions for my son. He is 21 and has been having leg pain in the area of the posterior proximal femur,(underneath his thigh). He has had Xrays, bone scan, CAT scan and MRI. There is no fracture. He is a tough scan due to contractures. Muscle atrophy and Osteoporosis are noted. He had spinal fusion 7 yrs ago and everything looks OK there. We are now pursuing pain management..Lyrica has not helped. We just bought a TENS unit. We are planning to try PT..Myofascial release techniques..the doctors really don't know what to do..I'm just searching for a way to improve his quality of life as he has to get into bed every 3 hrs or so as that relieves his pain. I'm worried about him physically and mentally as I feel he is getting depressed. He always enjoyed going to ballgames and that hasn't happened since last year. I guess I didn't expect this direction with this disease. Every loss of function we mourn again and have to find a new "norm". I just don't want to accept that this is the new "norm" There has to be a treatment or drug to help! Sorry if I am complaining but I get so frustrated with the medical profession. I learn more on the internet!!

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Hi,

I am guessing you have already considered or looked at this but it sounds like his seating system could maybe benefit from some tweaking.  There are many types of cushions out there as well as going the custom route.  There are also some other "treatments if you can't solve with a change to his seating system. Seems like there might some nerve impingment which is fairly common with this population.  Other things to consider would be a cortisone injection (must be done in the right place or no benefit) or even a Botox injection (again needs to be in the correct spot). Sounds like this has become pretty miserable for your son.  Hope some of these suggestions give you a direction to go in...if you would like to discuss further i would be happy to.

Katherine

 

Thank you for your suggestions. Chris has seen a seating specialist, tried different cushions, Roho seems the best. I think the doctors aren't sure if it's a muscle or nerve problem but the Lyrica didn't help. Maybe the injections you suggest may help. I will discuss with MD. Has your son experienced this type of pain?

Katherine M. Reynoldson said:

Hi,

I am guessing you have already considered or looked at this but it sounds like his seating system could maybe benefit from some tweaking.  There are many types of cushions out there as well as going the custom route.  There are also some other "treatments if you can't solve with a change to his seating system. Seems like there might some nerve impingment which is fairly common with this population.  Other things to consider would be a cortisone injection (must be done in the right place or no benefit) or even a Botox injection (again needs to be in the correct spot). Sounds like this has become pretty miserable for your son.  Hope some of these suggestions give you a direction to go in...if you would like to discuss further i would be happy to.

Katherine

 

I am 22 years old and I had some issues with my sciatic nerve a while back. Switching to a Roho cushion helped and I've also been using a Roho bed overlay. what helped me the most was ASTYM therapy (astym.com). It was painful, but totally worth it. I had a friend who also had good results from it.

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