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hey all
Hi everyone. I would like to wish group all the best. My name is Doan - Leader of Vietnamese DMD club, I have lived with Duchene muscular dystrophy for almost 30 years.
I'm trying my best to head to a bright future for all the members in club. The club is quite young in age, so hopefully our club could connect to and learn from PPMD community.
PPMD has launched a program – Risk/Benefit in Duchenne Therapies – to help inform the FDA and other government agencies, biopharmaceutical companies, and others about the treatment priorities and risk tolerance of the Duchenne community.
We’ve had a great response to our first survey, with more than 90 participants so far, but need a few more before we close it tomorrow.
If you are a parent or guardian of an adult with Duchenne who has lost the ability to power their own wheelchair, please consider taking our survey before 9 PM eastern tomorrow.
I am working on getting a full ride scholarship for boys with DMD at a Boston University. I am looking for some stories about why you/your son goes to go to college to help my presentation.
Thanks
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