Latest Activity: Aug 29
Started by Rebecca Lilley. Last reply by Emily Wiebe Aug 29.
Started by Emily Wiebe Aug 26.
Started by Kathy Guthy. Last reply by Ian Conner Jun 27, 2011.
Hi everyone. I would like to wish group all the best. My name is Doan - Leader of Vietnamese DMD club, I have lived with Duchene muscular dystrophy for almost 30 years.
I'm trying my best to head to a bright future for all the members in club. The club is quite young in age, so hopefully our club could connect to and learn from PPMD community.
PPMD has launched a program – Risk/Benefit in Duchenne Therapies – to help inform the FDA and other government agencies, biopharmaceutical companies, and others about the treatment priorities and risk tolerance of the Duchenne community.
We’ve had a great response to our first survey, with more than 90 participants so far, but need a few more before we close it tomorrow.
If you are a parent or guardian of an adult with Duchenne who has lost the ability to power their own wheelchair, please consider taking our survey before 9 PM eastern tomorrow.
I am working on getting a full ride scholarship for boys with DMD at a Boston University. I am looking for some stories about why you/your son goes to go to college to help my presentation.
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