Kansas City Area DMD families

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Kansas City Area DMD families

All families with DMD/BMD children, in the Kansas City area, are welcome to post.

Location: Kansas City Metro
Members: 10
Latest Activity: Jul 12, 2016

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Comment by Janet Moses on February 19, 2013 at 11:14am

I have a Grandson Logan who is 8 years old.  He was diagnosed with DMD in 2008.  Logan lives in Leavenworth Kansas and is still walking but it is getting a lot harder for him.  He goes to the MD clinic at KU.  I would love to communicate with parents and/or grandparents for support and understanding.  

Comment by Renee Azzouz on July 15, 2009 at 5:55pm
I appreciate that. We are still in the figuring it all out stage. Are there ever groups/meetings etc in the area?
Comment by Anthony Stoops on July 14, 2009 at 9:52pm
Hi Renee- Our son, Quinten, is 8. He was diagnosed just before his fifth birthday. We would love to meet you and answer any questions you may have. We have some friends with a 6 yr. old duchenne boy in Overland Park. When you feel comfortable to call, feel free. I will send you a private message with our phone number.

Anthony
Comment by Renee Azzouz on July 14, 2009 at 6:04pm
Cori-- I will admit my stupidity I dont know what FACES is so you may have to educate. We are in Lenexa but are anxious to get involved
Comment by cori tharp on July 14, 2009 at 10:05am
Hi Renee- My son is 2 and a half and has been diagnosis for about a yr now with DMD. I am trying to get a FACES started here in the KC area, if so are you interested in becoming involved? I will keep you informed. We live in independence. Where in the KC area are u? God Bless.
Cori Tharp
Comment by Renee Azzouz on July 13, 2009 at 11:55pm
Hi my name is Renee, my son Riyan, 7, was recently diagnosed with DMD, We had believed that his difficulty was secondary to a broken femur until this summer. We live in Lenexa KS and are anxious to get involved with other families who are going through similar struggles
Comment by Anthony Stoops on June 30, 2009 at 1:18pm
Welcome to the Kansas City area group. I know there are many families in the KC area with sons that have DMD or BMD. I would like to get to know as many as possible. I believe we can support each other and offer ideas that may help another family cope and live a fuller life.

Anthony
 

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