Outliers - Intermediate between Duchenne & Becker MD Discussions (4)

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My son is 22 months now and was diagnosed 6 months ago. He has deletion of exons 3-30, that is in-frame. But because he is missing nearly 1…

Started by Simone & Elias

16 Dec 31, 2017
Reply by KarstensMom

Addressing intermediate MD at school

My son just turned 9 and is starting to get frustrated at not being able to run as fast as his friends.  I am planning on addressing the is…

Started by Regina

4 May 5, 2011
Reply by Regina


Has anyone heard anything about Utrophin trials and what is happening with that. I feel like the Duchenne world is moving forward which I a…

Started by Eliane Khoury

1 Mar 25, 2009
Reply by Keith Van Houten

inframe confusion

My nephew also has a inframe deletion, his deletion is 8-21 but his phenotype is Duchenne, what I cant understand is why their body doesnt…

Started by Eliane Khoury

9 Mar 23, 2009
Reply by Kelvinsmom - Michelle


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