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Idebenone

As one of the only supplements passing phase IIa with prove of safety and efficacy for our kids (450 mg daily)idebenone phase IIa.pdf, we should start looking at this one seriously.

Members: 15
Latest Activity: Feb 22

Great news from phase III trial

Discussions

How much to give?

Started by Nimi Langer. Last reply by Sai Chand. Gurujala Feb 22. 3 Replies

In the small group phase IIa trial that showed safety and efficacy Santhera gave patients 450 mg a day (150 mg in…Continue

How much and how to give

Started by Nadja. Last reply by Alexandre da Costa e Silva Dec 22, 2014. 3 Replies

Hello,since 4 weeks i give my four years old son max 300mg idebenone,i mix it in his milk in the morning?Is this good/ok?How much in what kind of meal and what times should idebenone give?what is the…Continue

where to buy?

Started by Nimi Langer. Last reply by David Oct 29, 2013. 1 Reply

.where to buy?through the webEbaySmart drugsSmartPowdersKirkmanNubrainNot all have it on stock and at 10.2013 i could find only in stock at smart drugs and nubrain and Kirkman on ebay. Continue

Comment Wall

Comment

You need to be a member of Idebenone to add comments!

Comment by Jason Darienzo on May 17, 2014 at 5:16pm

Should patients switch from Idebenone to Catena? 

Is Catena a prescription drug covered by insurance?

 

Comment by David on May 16, 2014 at 6:28pm
My son had been on 900 to 1000 mgs of idebenone since he was 8. I feel it is very safe but your doc should weigh in.

Still don't see why this trial matters since this stuff is already available online.
Comment by Ashok Sangwan on May 16, 2014 at 5:50am

Hello everyone,

Can Idebenone be given to 2.5 years old kid with DMD?

Comment by Nimi Langer on May 15, 2014 at 5:55am
Comment by Nimi Langer on May 15, 2014 at 5:52am

Great news Cantena passed a great milestone in Phase III

SEE

http://hugin.info/137261/R/1784768/611682.pdf

Comment by David on March 3, 2014 at 7:17pm
That trial has barely moved in 10 years. I give my son 1000mg of idebenone because it is safe. Does it help? Nobody can say for sure

You'll be waiting forever if you wait on catena
Comment by Nimi Langer on March 3, 2014 at 9:48am

Does anyone know anything about Catena's phase III clinical trial?

(mentioned in their website as 900mg daily)

 

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