Hi Mary.

I wish parents would talk more on this site as we alwasy want to talk about our sons but it seems others just go on with their lifes and somehow forget, maybe not forget but not in the for front of their thoughts any longer. Its been over 5 years now since Erich died, and I wish it got easier but it doesn;'t. It gets tolerable where I can put the aching, horrrific pain just below the surface so I can function, but at any minute of they day it can emerge again like a flood.

 

I miss Erich more each day and just want to hug him one more time. Our boys are amazing boys and I do hope noone ever forgets them. I hope all is well with you.

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Sharon, there is a group on facebook called The Face of Children Fighting Duchennes and there are other groups.  There are many of us in these groups.  Please join us on Facebook.  My email is eunicegrivera@gmail.com

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