I am so sorry for your loss. I know how devastating it is and continues to be every day. It is an emptiness that is never filled or relieved. It seems to be an every day battle just to get through the day. My son Erich died on Ocotber 16, 2005. He died in his sleep. I am so sorry to hear the last months of your sons life were so hard. This is a hard time of year. May your holidays be blessed and full of good memories.
My son passed away January 5th of this year due to complications from MD. Timmy had Duchenne's and his heart stopped. He went to bed the night before woke up the following morning and said he was still tired. I went to work leaving him in the care of my mother and daughter. In one hour my daughter called me to say Timmy was not feeling well and she wanted to call 911 within one hour of me leaving for work Timmy had passed away. I went to the hospital not knowing he had passed. I was told that he died in his room that his heart just stopped. He was spared so much suffering and I was thankful for that but, I miss him more than words can describe. He was my whole life all my actions and thoughts were around him. I now have to find me and wait for the day to be joined in heaven with my angel
HI , I have not been on for a while, M y son Emmanuel Stewart AKA Manny passed away September 26, 2012, i was told his heart was weak and he could not breath on his own, i know my son did not want a trach and i did not want him to suffer, he was on so many medications,and he was on life support, his heart failure happened so quick he was fine all day on September 17, 2012, he did recognize family was there he would open his eyes and squeeze our hands, on the day the doctors showed me his chest xrays, i did not want to let him go, but he was suffering to breath, i did not want him to suffer anymore, when they took the life support away he died really fast, he did turn his head to look at me with tears and that look is stuck in my head forever. Everyone loved him, he died of Duchennes, he was born November 23, 1995 on Thanksgiving he was 16 years old almost 17, we were all planning to get together for Thanksgiving because we did not know how much more time he had , i was warned of that in April 2011, he was my whole life i took care of him until he passed away it is so hard now i miss him he was my whole life, i tried to go back to work but it is hard to do my job was to take care of my son, i cry alot he was my only child. but i thank god i was there when he passed away, he is in heaven with all the other angels.