Comment

Comment by vilma rodriguez on April 22, 2011 at 5:53pm

Hello dear friends:

I know for experience this page is not very popular among parents dealing with DMD and the last thing you want to loose is hope for a cure.But While we wait for a cure we need to encourage this wonderful kids to base their hope and faith in God because ultimately he will help us go thru it and if there's a cure praise Him and if they must depart from us praise Him to. My son's relationship with God Helped him tremendously in dealing with this condition and looking back to all we went thru together God was there every step of the way. I was angry at God and felt life was unfair but my son made me realize that Jesus is the answer. Try Him I did and can't wait to see my Ismael again in Heaven 

Comment by kimmy watters on December 24, 2010 at 4:32pm

 my name is kimmy watters i know friends   who sons have dmd. i would like to come    and offer my support in anway,  i be praying  for all you have merry christmas. god bless kimmy watters

Comment by Kimberly Foernsler on May 24, 2010 at 8:41am

Beautiful words Vilma!! I lost Kory in 2007. My 6 year old asks me if I want Kory to come back and even though it is hard to "no", I have to. I would love to have back with us but I know he is in a much better place. I don't want Adam to be confused. He sometimes gets upset and wants his big brother back at home. I have to talk him out of it by explaining how much fun Kory is having there and that Kory will remain in our hearts forever. No one can ever take Kory completely away. Our memories will live forever. We will get to see him again when we join him in Heaven.

Comment by vilma rodriguez on May 23, 2010 at 7:26pm

.I was blessed to have a son like Ismael who brought so much happiness and joy to our family and we know he is not lost forever we're just separated for a while but someday we will reunite again and that hope make me happy even thou I missed him dearly and at times I feel my heart breaking in many pieces my faith in Jesus Christ is helping me thru. My son taught me to love the Lord no matter what and to trust him no matter the cirscunstance. As a parent I can honestly say that God is the only one that can heal our hearts and help us turn this sorrow in a blessing to someone else. Please fell free to call me at 813 569-5388 if any of you need to talk to someone that can understand your pain.

Comment by Sharon Malone-Dugan on May 8, 2010 at 11:16pm

Danielle. I know there is nothing in this life we will not be able to handle after having lost our sons. It is horrendous oredeal that we must now live with and the lonliness is at times so unbearablew, I just want to curl up and die. My 2 other girls keep me going. Erich died Oct. 16, 2005 , this year marking the 5th year. It seems like yesterday. I can remeber everything I have been through since then, but if somene were to ask me what I did at work the other day, I would not be able to answer. it is like a fog has taken over my life that never lifts. It is like a deep gashing hole in my heart that keeps bleeding. I am not sure I beleive when people say it gets better with time, I think the only thing that gets even a slight bit better is that I am now able to hide my tears. I put them right below the surface where at any time during the day, they could burst through, but now I try my hardest not to allow that. People dont understand unless they have lost a child. Losing a husband, even a mom and dad is not the same. Your child is a part of who we are.They are the beath that we breathe and every step we take. And they are the best part of our lifes. I like you just want one more hug, to hear one more laugh and to hear his voice.

I am so sorry for your loss Danielle.

Comment by Danielle on April 28, 2010 at 8:54am

I feel similar to how you described. I found this site and was over joyed, but then I realised I fitted into the bereaved category and I just couldn't accept that very well. I find comfort in belonging but at the same time wish that I could be in the other groups talking about tips, holidays and things (I still do talk about those things) but it's not the same. I haven't been on here because of the fear of accepting that it has been 1 year and 6 months (1 year and 6 months!!!) part of me feels cross about time passing, I don't want Frankie to get further and further away.Every month is a month further from frankie. It will be his 21st birthday on June 3rd and to keep his memory alive I'll be diving with sharks! I imagine telling him and I wish I could see his face. (http://www.justgiving.com/Danielle-Johnson )

A huge chunk has been taken from my heart and I don't think I'll ever be the same. When people say that, I understand in theory but now actually going through it, i'm actually a different person. I feel I'm in a sleep walking day dream most of the time, just going through motions in life but not actually experiencing any of it, and waiting for something that never comes (for him to come back). I'm not a depressed person in general and to look at me everyone would say I'm energetic, motivated and strong. But inside I feel a weakness. I get upset much more easily and I don't think people realise that it's because I have a constant sadness in my heart. A piece of me is missing, a peice of my limbs has been chopped off, a piece of my heart has been cut out, a piece of my soul stolen, and a chunk of my personality and strength gone forever. I yearn for just one more hug....

Comment by Mary Sahagun on April 27, 2010 at 9:37pm

Vilma,
So saddened to hear of another loss. We lost our Kenny March 31, 2007. My heart breaks for you, I understand the pain and pray that you find peace in the days to come. You and your family are in my prayers.
Love, Mary

Comment by Robyn Hoffman on April 27, 2010 at 8:56pm

VilmaI
Iread in shock and feel your pain! We lost Curtis one year ago this April 18th. Trust in God and allow your heart time to grieve. This is such a fragile time- be good to yourself! My prayers are with you and your loved ones. Hugs, Robyn

Comment by vilma rodriguez on April 27, 2010 at 8:36pm

Our loving son Ismael went with the Lord on April 23rd,2010 I need support from people that can understand how I feel. He blessed our lives in so many ways. He was a caring loving person that loved the Lord above all, he never complained or was angry at God and when I ask why us he would say "God is good and he has a purpose in everything that he does and he made me this way so when people see me learn to appreciate what they have" He touched many lives with his positive attitude and bright smile.

Comment by Ana on January 17, 2010 at 9:41pm

Hello my dear friends
It has been a long time since I came on the site to read or share anything. It has been a difficult few months for us here. November 12th Marked the 3rd year of Jeffrey's passing. I often find myself asking has it really been 3 years? And I look around at his empty bed and room and the deep wound in my heart hurts so much I know it's been three years. I've been 'frightened' to come on line. Why? I don't know. It's like if I don't come on I don't need to face my pain. Coming on here and reading about everyone's expeience although very helpful and a blessing, it makes me so sad to be a part of it. It frightens me becaue I have to face the fact that I am without Jeffrey and so are you my dear friends - without your precious boys. I am frightened because we all share a common thread and are bonded by the loss of our boys. Does this make sense? It's so foreign feeling.

Christmas - we survived the holiday. I found myself sink deeper and deeper into depression over the holiday. It was a challenge to get a tree and decorate it for the sake of Gabriella who is only six. But we did it. But I could not face entertaining or visiting my small group of friends. It was too painful. In December I lost two dear friends - Grace who is my age (41) to cancer and Eileen to cardiac complications. Very difficult indeed as Eileen was laid to rest on 23rd Dec.

And if that was not bad enough - on Christmas day at about 3:00pm I had a miscarriage. The sad part was that I found out I was expecting the day before and less than 24 hours later it was gone. I was in shock and devastated. Not sure how far along I was but the pain was so intense and the result showed me that I was a little further along than I thought. I guess with dealing with Jeffrey's anniversary, loosing my job, the two funerals it was just too much. Life sure has a way of biting us in the behind huh?

As we move into January I feel myself getting back to some sort of normalacy. I found a job with lovely people and althogh the work is not challenging enough I am grateful for a job. The weather has been so cold and I love it. Gabriella has gone back to school and is doing well. She too had a difficult holiday and was talking about Jeffrey non-stop. She misses her brother so much. We had a little light this holiday - in the form of 2 beautiful monach butterflies! The amazing thing is that Gabriella found them on CHristmas Eve and they stayed with us in the house for over a week. SHe insists it was Jeffrey visiting us for Christmas. SHe was reduced to tears when the butterflies passed on and has kept them in a special box. Today while outside playing she found 3 monarch butterflies and she cares for them in a basket. She is learning about the circle of life and how everything has a season. She understands that these butterflies were born outside their season of spring/summer and cannot survive the cold. SHe now cares for them - feeds them, takes them for walks and brings them in at night. It truly is amazing to watch my 6 year old take such good care of these majestic butterflies.

How is everyone? I see that no one has been on here for a while. I am hoping each and every one of you and your familys are well.
all my love
Ana

• ‹ Previous
• 1
• 2
• 3
• …
• 11
• Next ›
• Page