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Florida Families

Families from Florida that are affected by DMD/BMD

Members: 41
Latest Activity: Dec 12, 2017

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Comment by Michelle Meunier on July 24, 2009 at 7:19am
There is always something they can do . My sons meds have made a real difference in him . He is doing things he could never do like hop with both feet . You may want to give the MDA more thought . Good luck and if you need more info please let me know.
Comment by Windy Jackerson on July 23, 2009 at 6:49pm
I haven't take my son to mda yet. He is a little over two. Not much they can do for him. There is a mda clinic in Orlando but I do not care for the doctor at the clinic. Thanks for the info, it maybe worth the drive!
Comment by Michelle Meunier on July 23, 2009 at 6:28pm
Dr. Fernandez is at St. Pete at MDA and his office is in Tampa . May be far for you .
Comment by Windy Jackerson on July 23, 2009 at 5:55pm
Where is Dr. Fernandez? We live outside of Orlando.
Comment by Michelle Meunier on July 23, 2009 at 1:05pm
My son goes to Dr. Fernandez but he is part of MDA . He is very well known in and out of Florida . We see him at MDA and at his office . We like him alot , he is very up front and is great with Joey . If you want his office number or any info please let me know .
Comment by Nicole Chiaramonte on July 21, 2009 at 12:45pm
Hello Everyone,
I would like to know what doctors you take your boys to in Florida. I am in Hernando County, Fl about 1 hour from Tampa. I would like to find a doctor that kind of knows about DMD besides the MDA. I'm willing to drive anywhere pretty much in Florida. I know that Dr.Wong is really good and a lot of parents go up there. But i can't do that right now. Thank You in advance.
Comment by pbgossett on March 30, 2009 at 9:25pm
Sorry it took me so long to answer its been awhile since I have been on the website. My son is 12yrs old and we live in Ocala Fl.
Comment by Danielle L Shoupe on February 28, 2009 at 2:42pm
sportsability, an outdooor event for people with special needs and their family and freinds, is coming on the weekend of April 18th. My son totally loves this event and I was wondering if anyone on this group wants to attend.
Comment by Lorri Sizenbach on February 28, 2009 at 11:02am
Hi, My name is Lorri. I just joined this group. My son just turned 5. We found out that he had DMD a couple months before he turned 2 years old.
Comment by Nicole Chiaramonte on February 25, 2009 at 1:25pm
What neurololist do u take your sons to decides the MDA. I would like to find a doctor outside the MDA that know a little about the DMD. The one that I take my son to now does not have any kids that have DMD or knows that much about it.
 

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