Okay, so today I am really angry!! I feel like I am banging my head on a brick wall. The doctors I have had the (mis)fortune to have been involved with since we arrived here have been arrogant, condescending, ignorant, incompetent, patronising or all of the above!
Today I had my first consultant visit for my pregnancy (I am currently 9 weeks) and I was hoping to be booked in for my CVS at 11 weeks. He asked to see all my notes from my previous pregnancies, which is something we dont' actually get from our doctors in Singapore or Japan (and the Japanese ones aren't in english so they would be no use to him anyway). I asked why he needs previous notes and he explained that he needs to know about all my pregnancies and labours. I explained that since I personally went through all of them myself, I would happily give him details (either brief of extensive) about all my pregnancies and labours. He wasn't happy with that. He says he can't treat me effectively without prior history and asked if I can get it sent from Singapore. I told him I can ask, but even if they say yes it could take some weeks, and he told me he can't book me into a CVS without previous notes. Once again, I explain to him that I personally know what went on in all my pregnancies as, having a science/anatomy/genetics background, I would ask the doctors all sorts of questions and ask for different things to be explained. I pleaded with him to let me have my CVS at 11 weeks so that I would still have plenty of time to deal with the results once they came back (and especially if results were delayed for some reason). He said I would have to have the Nuchal Transluscensy test first at 12 weeks and then book in for CVS a week or so after that!! He also told me I would first have to see a genetic counsellor, and I told him that was not necessary as I have been through this before and have talked to many genetic counsellors since James had his dx. After much protestation from me (and lots of deep breathing and counting to 10) he said he will book me in for my CVS "when he can" at Kings College, but I would still have to see a genetic counsellor for the results. Once again, I explained to him that I know my options and that we have already made our decision what we will do if it is a boy with DMD (which is terminate). He said, well it's your decision! No shit Sherlock!! I have walked out of that hospital today so angry and frustrated, and am now looking up private antenatal care.
Does anyone have any info on going private or how I even find a private clinic/doctor? The only one I could find is in Portland Hospital in the city, and that's a little too far and way too expensive. I just want a private consultant but am willing to have my baby with a midwife in the nearby hospital. Maybe I should just go back to Australia, or better to Singapore, to have it. I was really excited coming here to a system of free medical, and thought it would be smooth and efficient, but it hasn't worked out that way at all. I'm at the end of my tether!!