Hi Danielle,
I have 3 kids, one with DMD, and am currently pregnant with my 4th. Apart from the usual concerns like "Oh my god, how am I going to handle 4 kids" to "Oh my god, how am I going to handle 4 kids when the eldest has DMD", I also have the worries about what my non-affected kids are going to be going through as they grow up. I have heard stories about siblings having resentment for all the attention their brothers get, and becoming moody and withdrawn, not wanting to grow close to their brothers because they worry they will die and don't want to go through that loss. Tell me Danielle, how did you feel and how did you cope? What can we, as parents, do to ensure all our kids feel loved and don't have any resentment towards their siblings. It is a hard thing to go through as a parent or a boy with DMD, but noone ever seems to think about the effect on siblings. Any insight would be totally invaluable to me, and I am sure to many others.
Tags: