Families from the U.K (United Kingdom) Discussions (8)

← Back to Families from the U.K (United Kingdom)
Discussions Replies Latest Activity

GOSH and steroids

Just out of interest, does anyone attend GOSH and have a prescription for deflazacort? Or do they only prescribe prednisolone? My little bo…

Started by lisa burke

2 Oct 31, 2011
Reply by lisa burke

Please watch and pass on - my poem to my son.

I wrote this for my 4 year old son James, late last year. On March 7th (last Saturday), my husband headed off on a mammoth bike ride from S…

Started by Sharyn Thompson

2 Oct 28, 2011
Reply by Christine Davies

wheelchair swings

Just wondering if anyone knows of a company who make wheelchair swings or other play equipment. We've just come back from the park with a v…

Started by claire holloway

3 Mar 1, 2009
Reply by anne

So angry today!!

Okay, so today I am really angry!! I feel like I am banging my head on a brick wall. The doctors I have had the (mis)fortune to have been i…

Started by Sharyn Thompson

11 Feb 2, 2009
Reply by Tamara "Michael's Mulisha"

prescription for deflazacort

I have been told that I can get a prescription for deflazacort from our GP. Does anyone know of this is true?

Started by Sharyn Thompson

9 Jan 26, 2009
Reply by KellyR

different 'treatment' of dmd in usa

i'm loving this forum... so full of information i'm seeing a few 'different' things relating to dmd use of growth hormones use of scooters…

Started by anne

16 Jan 23, 2009
Reply by Cheryl Markey

Facebook!!

Who has it? Look me up! Sharyn Real Thompson. I know a few of you are already my friends, but it would be great to have everyone on here! I…

Started by Sharyn Thompson

3 Jan 8, 2009
Reply by Emma Jerred

Danielle - can you give us some insight as a sibling?

Hi Danielle, I have 3 kids, one with DMD, and am currently pregnant with my 4th. Apart from the usual concerns like "Oh my god, how am I g…

Started by Sharyn Thompson

1 Jan 7, 2009
Reply by Danielle

RSS

Need help using this community site? Visit Ning's Help Page.

Members

Events

© 2019   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service