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GOSH and steroidsJust out of interest, does anyone attend GOSH and have a prescription for deflazacort? Or do they only prescribe prednisolone? My little bo… Started by lisa burke |
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Oct 31, 2011 Reply by lisa burke |
Please watch and pass on - my poem to my son.I wrote this for my 4 year old son James, late last year. On March 7th (last Saturday), my husband headed off on a mammoth bike ride from S… Started by Sharyn Thompson |
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Oct 28, 2011 Reply by Christine Davies |
wheelchair swingsJust wondering if anyone knows of a company who make wheelchair swings or other play equipment. We've just come back from the park with a v… Started by claire holloway |
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Mar 1, 2009 Reply by anne |
So angry today!!Okay, so today I am really angry!! I feel like I am banging my head on a brick wall. The doctors I have had the (mis)fortune to have been i… Started by Sharyn Thompson |
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Feb 2, 2009 Reply by Tamara "Michael's Mulisha" |
prescription for deflazacortI have been told that I can get a prescription for deflazacort from our GP. Does anyone know of this is true? Started by Sharyn Thompson |
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Jan 26, 2009 Reply by KellyR |
different 'treatment' of dmd in usai'm loving this forum... so full of information i'm seeing a few 'different' things relating to dmd use of growth hormones use of scooters… Started by anne |
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Jan 23, 2009 Reply by Cheryl Markey |
Facebook!!Who has it? Look me up! Sharyn Real Thompson. I know a few of you are already my friends, but it would be great to have everyone on here! I… Started by Sharyn Thompson |
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Jan 8, 2009 Reply by Emma Jerred |
Danielle - can you give us some insight as a sibling?Hi Danielle, I have 3 kids, one with DMD, and am currently pregnant with my 4th. Apart from the usual concerns like "Oh my god, how am I g… Started by Sharyn Thompson |
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Jan 7, 2009 Reply by Danielle |
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