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Families from the U.K (United Kingdom) Discussions (8)

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GOSH and steroids Just out of interest, does anyone attend GOSH and have a prescription for deflazacort? Or do they only prescribe prednisolone? My little bo… Started by lisa burke	2	Oct 31, 2011 Reply by lisa burke
Please watch and pass on - my poem to my son. I wrote this for my 4 year old son James, late last year. On March 7th (last Saturday), my husband headed off on a mammoth bike ride from S… Started by Sharyn Thompson	2	Oct 28, 2011 Reply by Christine Davies
wheelchair swings Just wondering if anyone knows of a company who make wheelchair swings or other play equipment. We've just come back from the park with a v… Started by claire holloway	3	Mar 1, 2009 Reply by anne
So angry today!! Okay, so today I am really angry!! I feel like I am banging my head on a brick wall. The doctors I have had the (mis)fortune to have been i… Started by Sharyn Thompson	11	Feb 2, 2009 Reply by Tamara "Michael's Mulisha"
prescription for deflazacort I have been told that I can get a prescription for deflazacort from our GP. Does anyone know of this is true? Started by Sharyn Thompson	9	Jan 26, 2009 Reply by KellyR
different 'treatment' of dmd in usa i'm loving this forum... so full of information i'm seeing a few 'different' things relating to dmd use of growth hormones use of scooters… Started by anne	16	Jan 23, 2009 Reply by Cheryl Markey
Facebook!! Who has it? Look me up! Sharyn Real Thompson. I know a few of you are already my friends, but it would be great to have everyone on here! I… Started by Sharyn Thompson	3	Jan 8, 2009 Reply by Emma Jerred
Danielle - can you give us some insight as a sibling? Hi Danielle, I have 3 kids, one with DMD, and am currently pregnant with my 4th. Apart from the usual concerns like "Oh my god, how am I g… Started by Sharyn Thompson	1	Jan 7, 2009 Reply by Danielle