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Exon Deletion 3-7

Connect with other families with exon deletion 3-7.

Website: http://www.frontstep.us/Delong/mda.htm
Location: Derry, New Hampshire (You are Welcome to Visit)
Members: 27
Latest Activity: Apr 10

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Daughters of Carrier Moms

Started by Colin McKenzie. Last reply by Colin McKenzie Jun 13, 2011. 2 Replies

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Comment by Wendy Bertellotti on November 3, 2008 at 4:23pm
Is this deletion one of the most common ones? We just learned of our 4-year olds diagnosis (DMD) in July. Do professionals know how this deletion is different from other genetic patterns in terms of prognosis or progression? We have another baby (1.5year) boy and haven't had the heart to test him yet.....Got a lot to learn. Best to all.
Comment by Donna Taylor on September 26, 2008 at 4:57pm
You are one step ahead of me! After that last post I started thinking how awesome it would be for us 3-7 families to have a group. Thanks so much for setting this up!!
Comment by Eileen DeLong on September 26, 2008 at 4:32pm
Hello,
I would like to reach out to all families with this deletion to share my story with. I have been aware of Duchenne MD all of my life. My mothers's brother Jack had it. He has born in 1919 and lived to be 39. Two of my mothers sisters had sons with it, Ricky and Mark, and they lived into their 40's. I am the youngest of 20 grandchildren and so far the only one affected. I have 2 boys, Calvin age12 and Jared age 9.
 

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