Latest Activity: May 7
Started by Iris Dunaway. Last reply by Andrew Kerr Mar 4.
Started by Jessica May. Last reply by Wyatt's Mommy, Melissa Feb 13.
Started by Leslie Becknell Marx. Last reply by Wyatt's Mommy, Melissa Feb 10.
PPMD has launched a program – Risk/Benefit in Duchenne Therapies – to help inform the FDA and other government agencies, biopharmaceutical companies, and others about the treatment priorities and risk tolerance of the Duchenne community.
We’ve had a great response to our first survey, with more than 90 participants so far, but need a few more before we close it tomorrow.
If you are a parent or guardian of a very young children, especially age 4 and under, please consider taking our survey before 9 PM eastern tomorrow.
Thank you for your participation!
My son Nicky was potty trained at 3, but he has more frequent accidents, because if he is busy, or resting, it's so much more of an effort for him to get up and go to the bathroom. I talk to him about it, but don't really get after him too much. He also wears a pull up at night.
I have two boys that have dmd. My oldest is six. He has been potty trained for 2 years now but still wears pullups also. He takes miralax and has to see a urologist. My youngest just turned 4 and it took about a year to get him to potty train. Their neurologist also says it isnt because of the dmd. But with so many children with dmd it seems more likely that it does have something to do with it. It got frustrating potty training but eventually he came around and started. In their own time they will do it just be patient.
My son Shaun is not ptty trained either and he is 5 as well. He has his moments where he will go but then the next day wants nothing to do with it. Shaun is also short for his age i was told by a complete stranger. Is that "normal" for children with dmd.
Our son Colin was trained at 3. He did not have any problems at all, even at that age. I think DMD affects everyone a little bit differently,though.
When they were diagnosing him, they did ask about potty training, so it must have something to do with it!
Thank you for responding; our son just turned 5 - we are working on it but I'm definitely feeling pressure form grandparents etc... bummer
my son was 4 this year and he has just recently been trained in the last few months. He would go on the toilet but not all the time. He still wears a pull up to be at night just in case. I think every child is different, I don't think it is a result of DMD, he just isn't ready yet.
hello everyone - haven't been on in some time... need help w/ potty training an almost 5 yr old - YIKES. the Drs say DMD should not be the cause of his slow potty training... am I crazed? Levi just doesn't want to cooperate. Have any of you had boys not trained early??? help
Welcome toPPMD Community
Sign Upor Sign In
Or sign in with:
Need help using this community site? Visit Ning's Help Page.
April 29, 2013 to November 1, 2013 – Online Raffle
May 28, 2013 to May 31, 2013 – University of Washington
© 2013 Created by PPMD.
Report an Issue |
Terms of Service
Please check your browser settings or contact your system administrator.