Latest Activity: Nov 7
Started by Dalibor Randjelovic. Last reply by Sai Chand. Gurujala Nov 7.
Started by Char Burke. Last reply by Limca Jhaveri Oct 18, 2015.
Started by Char Burke. Last reply by Nid Hadidi Dec 26, 2012.
Clinical research is going on Deletions. Anybody has any idea on Duplication's research.
Serepta Pharma working on 40-53 Deletions.
Does Gene Therapy is applicable for Duplication's as well. Please share .
My two sons age are 8 month and 9 years. Duplication of Exons 18.I am a carrier..;(
My Nephew age is 7.5 years.
Please can anybody tell, When the complete treatment can be expected please
He's 12. Just sent request.
Marilyn Ash - what FB groups are you in? I am only just getting involved on FB and am behind the curve.
Still here...still plugging away. You aren't alone. I don't comment much because sometimes it's hard. But, still here. :)
Just checking in to see how many of you are still out there. Duchenne is a lonely place and we are such a small group.
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