I am from Chennai, India. My son Viswajith is 9 yrs old and is having Duchenne.. He is having duplication of exons from 8-44.
He is on Deflazacort 6mg and calcium and vit.D3 supplement. He is having his physiotherapy regime regularly. He is able to walk but with a wadling gait. At time he seems to be clumsy but at other times he is doing fine. He is going to a regular school. We are showing him to Dr.V.Viswanathan, who is a very close friend to Mr.Eric Hoffman. Had a chance to meet up with Mr.Hoffman when he had come to chennai for a conference held by Muscular Dystrophy Association India, Chennai named MYOCON. Also met other eminent persons like Dr.Kate Bushby, Dr.Gunter et.. Came to know from Dr. Kate Bushby that there are no research going on for Duplications..I think it is high time they start research for duplications cos came to know from this community there are quite a few children who have duplication of exons.....