Lisa Jones's Discussions (138)

Discussions Replied To (9) Replies Latest Activity

"Hi Semra! Bradley is taking deflazacort 30mg daily. It is an alternative to predniso…"

Lisa Jones replied Aug 11, 2011 to What duplication does your son have?

54 Aug 28, 2011
Reply by Lee Ann Faeth

"Andrew, My son has an exon 2 duplication as well. He is going be 13 years old on the…"

Lisa Jones replied Mar 1, 2010 to What duplication does your son have?

54 Aug 28, 2011
Reply by Lee Ann Faeth

"Tina, the sprain must have been difficult especially since it contributed to the los…"

Lisa Jones replied Jun 19, 2008 to What duplication does your son have?

54 Aug 28, 2011
Reply by Lee Ann Faeth

"Hi Kim. I'd like to start Bradley on lisinopril. Our neurologist at St. Louis recomm…"

Lisa Jones replied Jun 7, 2008 to What duplication does your son have?

54 Aug 28, 2011
Reply by Lee Ann Faeth

"Hi Kim. Is Tyler 11 or 12 now? My son just turned 11 at the end of March so maybe he…"

Lisa Jones replied May 20, 2008 to What duplication does your son have?

54 Aug 28, 2011
Reply by Lee Ann Faeth

"That's great that he is so down to earth and willing to talk to families about it. D…"

Lisa Jones replied May 14, 2008 to duplications and future therapies

8 May 17, 2011
Reply by Char Burke

"I have my hopes set on exon skipping. It just seems like it will be a long wait befo…"

Lisa Jones replied May 13, 2008 to duplications and future therapies

8 May 17, 2011
Reply by Char Burke

"I agree that we really need to push for more research and more awareness. It'd be ni…"

Lisa Jones replied May 4, 2008 to What duplication does your son have?

54 Aug 28, 2011
Reply by Lee Ann Faeth

"Dr. Wong's comments to you on duplications sounds very reassuring. Thanks for sharin…"

Lisa Jones replied May 4, 2008 to What duplication does your son have?

54 Aug 28, 2011
Reply by Lee Ann Faeth

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