Latest Activity: Jun 22
Started by Char Burke. Last reply by Limca Jhaveri Oct 18, 2015.
Started by Dalibor Randjelovic. Last reply by Dalibor Randjelovic Feb 2, 2013.
Started by Char Burke. Last reply by Nid Hadidi Dec 26, 2012.
He's 12. Just sent request.
Marilyn Ash - what FB groups are you in? I am only just getting involved on FB and am behind the curve.
Still here...still plugging away. You aren't alone. I don't comment much because sometimes it's hard. But, still here. :)
Just checking in to see how many of you are still out there. Duchenne is a lonely place and we are such a small group.
My son Kevin is turning 19 next month and has a duplication on 62 or 63?
Hi! My son is 3 and was just diagnosed with DMD. He has a duplication of exon 2. He is still walking and not showing any signs/symptoms. Thankfully! My brother had DMD and so I pushed for testing recently. Our Genetic therapist told me that it's a milder and common form of DMD. Is that true? My brother had the same mutation and lived until he was 35 without any support/intervention. I'm still in shock trying to find the strength to keep fighting! It's so hard to live through it all over again. A lot of open wounds and fresh ones too :(
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