PPMD Community

Information

Duchenne Smiles

A Duchenne smile is a True smile, cannot be faked and exemplifies true enjoyment.

Members: 115
Latest Activity: Feb 27

A Duchenne Smile, A true smile

Since finding out about Jake and Colin having DMD, I have not had a lot of joy come from the word Duchenne. It’s was not a word I was aware of before the boys’ diagnosis, and if given the choice I’d rather not know its meaning. Learning the word along with the new adventure coming with it has made it a word that I don’t like to say. Well today while searching the word on google, I found a meaning that I like A LOT better. A Duchenne smile. A Duchenne smile is a True smile, cannot be faked and exemplifies true enjoyment. I thought how ironic, our boys at times may find it hard to smile, but when they truly do, it carries the same name as what can make for hard days. So I decided to make this group, where we can share stories and photos of our boys and they’re Duchenne smiles  I encourage you to do so. I’d rather associate the word Duchenne with a smile..how bout you?
The main photo is of my son Jake at his make a wish trip. He asked to meet the coast guard, and that “Duchenne smile” pretty much sums up what a great experience it was.
Peace and Love…..Danielle Bath

P.S. here is a link to its description on wikipedia...
http://en.wikipedia.org/wiki/Smile

Discussions

This group does not have any discussions yet.

Comment Wall

Comment

You need to be a member of Duchenne Smiles to add comments!

Comment by danielle on January 23, 2014 at 8:23am
Yes we went to Disney world for his wish trip and everyone there was wonderful with him
Comment by Andrea Cleary on January 23, 2014 at 8:17am

Surfer dude!  :)

Comment by danielle on January 22, 2014 at 11:12pm

this was my son on his make a wish trip this is at give kids the world in fla

Comment by danielle on January 22, 2014 at 11:12pm

Comment by Trinh Nguyen on November 18, 2013 at 1:19am

His eyes also smile. Love Ethan.

Comment by Andrea Cleary on November 17, 2013 at 10:32am

Love it Angela and Ethan, from Canada.

A.

Comment by Angella Taylor on November 17, 2013 at 1:48am

Ethans smile, my gorgeous son :)

Comment by Angella Taylor on November 17, 2013 at 1:46am

Comment by Trinh Nguyen on November 15, 2013 at 2:02am

Hi Andrea ! Yes.

We-mothers keep fighting for our boys' smiles in this challenging  journey

Comment by Andrea Cleary on November 13, 2013 at 5:57am

Happy smiles form Vietnam!

 

Members (115)

 
 
 

© 2014   Created by PPMD.

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service