Greetings to all. I am a genetic counseling student working on a project to enlighten my fellow students about muscular dystrophy. It is easy to find information about the medical and genetics of MD but I am more interested in the day to day information. I think it is important for genetic counselors to understand the possible obstacles and struggles of families. My questions to the community are:
1. Have you talked with a genetic counselor?
2. What obstacles do you experience that you feel a genetic counselor may not be aware of?
3. Do you have any suggestions for expanding the role of a genetic counselor that would benefit you and your family? (i.e. Talking to schools, educating teachers and physical therapists, obtaining services)
4. What is your most difficult day to day obstacle?
I greatly appreciate any information you can provide to help me understand muscular dystrophy and become a better genetic counselor.