This is to everyone:
Recently, I've been researching evidence-based topics for MD.
I've come across creatine and glutamine supplements. Evidence shows they help. Does anyone here offer these supplements to your child? If so, how and in what form? Also, this new study is out on Green Tea Extract and evidence shows that mice - with wheel training endurance (running endurance) are having nearly 300% improvement in muscle function. Same goes for Curcumin. If anyone has any further info, please let me know. Now here is a biggie I found - Oligodeoxyribonucleotide. Can anyone shed some light here?????
And, one more question. We are taking Liam in for his baseline heart visit with the cardiologist Wednesday. They said it was really unnecessary at this point and is generally done at age 10. But, I will not wait - I'm very proactive. I want it done now. I would like to know if you all can let me know anything specific that should be covered in this appointment. I want the EKG and Heart MRI done. But is there anything else I need to make sure is done or to at least ask about???
In short, you all are wonderful and I thank you all so much for being on this site. I' don't know what I'd do without even one of you.
So thanks and I am greatful.
Hi Irishgirl. My son Austin was also diagnosed at 8yrs old. He is about to turn 10 now. Its been almost two years since his diagnosis. Im not sure about your son's history, but with Austin, it has always been a question of why is he slow at this, why cant he do that. Now, I finally have my answer's. Not that they're the ones I wanted, but it explains alot.
I was shocked, depressed, embarrased (although, I wasn't sure why), I went through all of these feelings. I'm sure you are too. I try to get on here at least once a week. Look at my page and add yourself as a friend if you like. I think it's even more of a shock when they're diagnosed this late, it makes it alot harder to know what to tell them when since they haven't grown up knowing that they had this.
We go to Cooks childrens hospital in Ft.. Worth, Tx. We are involved in the MDA (although we have not actually met any other families yet), we've been on one MDA walk in our area. We also had Austin's "Make A Wish". That was wonderful, and definitely something you'll want to look into when the time is right.
Hope this helps. If there's anything I can help you with, or questions you have, just give me a hollar. If I can't answer them, I can usually find the answer.